Shikha Aleya is a writer, researcher and development consultant, and is involved in too many projects at any given time, including pet-sitting. Along with friends and colleagues, she is trying to create a community forum called Caregivers Link, to connect caregivers, resource people, and organizations together. As part of her work related to this, she has been collecting data to understand caregiver concerns and perceptions and needs better. >
Based on the data you have gathered so far, can you tell us how the caregiver role is perceived in India?
…informal family caregiving is not seen as a distinct role.
From the responses received and after talking to many caregivers, one key perception that emerges is that informal family caregiving is not seen as a distinct role.
Most caregivers are family members (children, parents, spouse, siblings) of the care receiver, and because they are related, their ‘caregiving’ is commonly perceived to be an extension of their role in these relationships. It is almost like saying, “You don’t need help to be somebody’s wife, mother, father or child, so why do you need help being a caregiver in those relationships?”
Most caregivers appear to agree that providing care is part of the relationship, but the problem is that the support they need to provide care is often missing. Even under normal circumstances (where no care is involved), everyone needs support in these roles. The situation is much more difficult when someone also needs to provide care; such a caregiver needs much more support.
This invisibility of the caregiver leads to caregiver isolation and is one of the areas that Caregivers Link plans to address.
Could you describe the common areas of concern caregivers have?
Top of the list is the need for trained attendants for home care.
Read the full post here : Invisibility of caregivers leads to their isolation: a development consultant shares her key perceptions