Persons with dementia share experiences

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This page presents some voices of persons with dementia from across the world. Hopefully these will give readers some insight on what someone with dementia experiences while they are still able to articulate their thoughts. Many of these voices are of early onset persons in relatively early stages of their dementia, but they may still give some insight. Unfortunately, no public voices of persons with dementia were available from India. 

One good collection of videos by persons with dementia is available from Dementia Mentors Opens in new window. See the videos at the site or in the Vimeo album at Dementia Mentors Video Archive Opens in new window.

Some videos may also be available as part of personal voices, on our resource page, Selected Online Videos.

Some blogs are:

Stories by persons with dementia are also available on various Alzheimer sites or can be seen in forums where they participate. News articles with personal stories are also available, and may be especially useful for FTD, such as When Illness Makes a Spouse a Stranger Opens in new window, a detailed story of a person with FTD, and Inside The Mind Of Frontotemporal Degeneration: A Patient’s Story Opens in new window, which describes the experience of Howard Glick.

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Dementia Care Notes