There are plenty of videos available online at resource sites and youtube that provide information on dementia or share patient and caregiver experiences and thoughts. Here are some selected English videos. Links are also included for pages with dementia/ care videos in Indian languages.
- English videos/ playlists from dementia organizations, explaining dementia and care concepts: Selected from reputed national organizations such as Alzheimer’s Disease International Alzheimer’s Society, UK, Alzheimer’s Society Canada, Alzheimer’s Society of Australia and Lewy Body Dementia Association.
- India-based English videos: documentaries and explanations of dementia, and caregiver stories.
- English videos explaining specific care topics, created specially for family caregivers in India.
- English videos selected from the world sharing personal experiences of dementia
- Videos in other Indian languages: Videos in various Indian languages are included in our pages with dementia resources in Indian languages. Click these links for these languages: Bengali, Gujarati,Hindi, Kannada, Konkani, Marathi, Punjabi, Tamil, Telugu, and Urdu
Various national dementia organizations have Youtube channels where they upload videos to share their activities and events, educate people about dementia and care topics, and share experiences of families living with dementia. Below is a selection from some reputed entities. Use them to get basic concepts of dementia, symptoms, progression, treatment, etc., and an idea of the care involved. However, please keep in mind that they were created for other countries and assume a diagnosis and care support system very different from what we have in India.
Alzheimer’s Society UK has several playlists Opens in new window, including one set of very small videos on the brain and on the brain changes in various dementia diseases. Each video is 1 to 2 minutes long, and focused on the physical changes in the brain. Topics include: An Introduction to the Brain, Brain Cells, What is Dementia, What is Alzheimer’s Disease, What is Vascular Dementia, What is Fronto Temporal Dementia, What is Posterior Cortical Atrophy, What is Dementia with Lewy Bodies, and Rarer Causes of Dementia. You can view a playlist with this brain tour using the link Dementia Brain Tour Opens in new window, or use the player below.
The Youtube channel of Alzheimer’s Disease International includes a playlist of videos for Caring for a person with dementia Opens in new window.
The Youtube channel of Alzheimer’s Society of Australia has several playlists, of which the playlist Living with dementia Opens in new window may be of special interest, especially its short clips on living with various types of dementia.
The YouTube location for The Lewy Body Dementia Association offers many videos on this form of dementia. View their playlists here Opens in new window. Of special interest is the playlist: Behavioral Challenges in LBD Opens in new window.
Alzheimer’s Society of Canada also has a Youtube channel, with several playlists of videos. One playlist that may especially be of interest is Care at Home Series Opens in new window.
A Burden of Love: a Indian documentary showing families coping with dementia, and also specialists talking about it
This 1998 video features several Indian families coping with dementia. It including interviews with the relatives as well as explanations and commentaries by specialists.Please note that while the description and discussions on dementia an dcare challenges are very relevant, the data on the current available day care and respite care is from 1998, and hence outdated. (If the youtube player does not load, watch “A Burden of Love” directly on Youtube Opens in new window.)
In this touching and poignant documentary by Anjan Kumar, “Portraits of Care”, four Chennai-based caregivers share their experiences as home caregivers. Through their interviews we get an opportunity to understand more of the ground realities of caregiving in India. (Note that Chennai-based Care Cubed, mentioned in the video, has not been functioning since Aug/ Sep 2015.)
View the CareCubed video on youtube Opens in new window, or click the play button below.
(If the youtube player does not load, you can watch “Walking down memory lane” on Youtube Opens in new window.)
Two interviews of an Indian caregiver looking after her mother are shared below. The first one discusses dementia care, awareness, and problems faced. The second one shares experiences of late-stage dementia care at home, and was recorded after her mother passed away.(If the youtube player does not load, you can watch the earlier interview directly on Youtube here Opens in new window and watch the late-stage care video directly on Youtube hereOpens in new window.)
(If the youtube player does not load, you can watch “Helping with Daily Activities, an example” on Youtube Opens in new window.)
- Communicating: This detailed video discusses the types of problems that dementia persons face when trying to understand others or when talking to others. It offers communication methods suitable for such situations and uses pictures and sketches to explain. View the video here: Dementia and Communication Opens in new window.
- Wandering: Most persons with dementia wander; some of them are not located for days, and some get seriously injured, even die. India does not have good support systems to locate and assist wandering dementia persons. This detailed video discuss the needs and restlessness that may cause wandering. It has suggestions for reducing wandering, and for how to get the persons home safe and fast in case they wander. Pictures and sketches are used to explain, and captions are available. View the video here: Dementia and Wandering Opens in new window.
You can also view this set as a playlist below:
The HBO Alzheimer’s Project: This project can be found at: hbo.com/alzheimers/index.html Opens in new window and has a lot of very interesting material. There are many video clips that can be streamed for viewing. Of particular interest here are: Grandpa, Do You Know Who I Am? Opens in new window, The Memory Loss Tapes Opens in new window, and Caregivers Opens in new window
Going Home: This is a prize-winning video showing the confusion and wandering of a dementia patient. (If the youtube player does not load, you can view Going Home on Youtube Opens in new window.)
My name is Lisa: This is a prize-winning video on the impact of a mother’s Alzheimer’s on a thirteen-year-old girl, very sensitively made. (If the youtube player does not load, you can view the Lisa video on Youtube Opens in new window.)
Interviews of family and friends of dementia patients: For more interviews, also see: view the videos of family and friends here Opens in new window.
Shared personal stories for non-Alzheimer’s Dementia: This selection of experience-sharing by families is related to less-common forms of dementia.
- Audrey and Alan’s story of living with vascular dementia Opens in new window from Alzheimer’s Society.
- Living with Lewy Body Dementia Opens in new window from Mayo Clinic.
- Frontotemporal Dementia Opens in new window from Mayo Clinic.
A player with the above personal story videos is given below for your convenience.
Families living with dementia are increasingly sharing their personal experiences online, especially families outside India, and you can search for more videos on Youtube, too.
Page/ post last updated on: August 7, 2017