Dementia Caregiver Resources across India

This page attempts to provide a consolidated list of dementia caregiver resources in India. In case you know of any other resource, or of any error on this page, please let us know by contacting us, or add a comment below. [read disclaimer]

Information specific to various cities/ states is available on the city-wise/ region-wise resource page here. [View page with informational websites on dementia / caregiving]

Announcement (July 2017): NIMHANS (Bangalore) is currently conducting an online support programme for caregivers of people with dementia as part of a study. Click here for details and to enroll Opens in new window.

ARDSI (Alzheimer’s and Related Disorders Society of India)

ARDSI (Alzheimer’s and Related Disorders Society of India) is one of the main resources for dementia caregivers in India. Their correct website is ardsi.org Opens in new window. (The older website, http://www.alzheimer.org.in , is not kept updated and has obsolete information).

ARDSI also has presence on Facebook: ARDSI National Office FB page Opens in new window, National Dementia Helpline FB page Opens in new window, and National Dementia Helpline FB group Opens in new window.

ARDSI’s activities are intended to help dementia patients and their families. ARDSI is involved in dementia and caregiving awareness activities, developing services, training family members and professionals, and undertaking research.  ARDSI runs helplines to provide information on Alzheimer’s and caregiving.  ARDSI also provides information for research studies on dementia. The Dementia India report 2010 was released in September 2010.

ARDSI also holds annual conferences on dementia. The last two conferences were in Mumbai (2015) and Mysuru (2016). The 2017 conference is scheduled to be held at Kolkata in September 2017. Read their last two newsletters: Newsletter Jan-Apr 2017(PDF file) Opens in new window and Newsletter Nov 2016(PDF file) Opens in new window.

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ARDSI Chapters in various cities of India

ARDSI has chapters in many cities. The ARDSI site Opens in new window states that the Administrative office is at Kunnamkulam (Kerala). Their national office is at Delhi. Their chapters listed are given below. However please keep in mind that you may get more up-to-date information by calling up the ARDSI National Helpline.

  • Bangalore (Bengaluru)
  • Calicut (Kozhikode)
  • Chennai
  • Cochin (Kochi) (This is also called the Ernakulam Chapter)
  • Coimbatore (this chapter has been inactive for some time, but may soon be revived)
  • Delhi (also called the New Delhi chapter)
  • Goa
  • Guwahati
  • Hyderabad-Deccan
  • Jaipur (this chapter was discontinued some years ago, but may be revived)
  • Kolkata (Calcutta)
  • Kottayam
  • Lucknow (this chapter was discontinued some years ago, but may be revived)
  • Manipur
  • Mizoram (this chapter is just starting off)
  • Mumbai
  • Mysore
  • Pathanamthitta
  • Pune (this chapter was inactive for some time, but may be revived)
  • Trivandrum (Thiruvananthapuram)

Information on existing chapters and the chapters being revived is available on the respective city pages at city-wise/ region-wise dementia resources pages, and information on the Lucknow and Jaipur chapters is on Resources for dementia care: Others page.

More ARDSI chapters are proposed in some cities. Examples are Baroda, Bikaner, Chandigarh, Ludhiana, Nagpur, Puducherry, Shimla, Srinagar, and Varanasi.

Most chapters provide various dementia-related services. Examples are memory clinic, caregiver support groups, home visits for assessment, caregiver training for home carers and for professional carers, day care centres, counseling, and helplines. They hold seminars and workshops. They publicize dementia through awareness programs, functions for the World Alzheimer’s Day, and other events. Patients and caregivers can contact the relevant ARDSI chapter for information and support. Some of the ARDSI chapters (such as Bangalore, Delhi, Hyderabad, Mumbai, Calcutta) maintain websites, though these may not have up-to-date information on events, activities, and services. It is best to contact the organizations to get the latest news.

Some ARDSI chapters are run in coordination with or managed by well-known hospitals of the city, or by major elder care service organizations. For example, ARDSI Bangalore is associated with Nightingales Medical Trust, Bangalore.

Information related to ARDSI chapters can be found in the respective page of the city-wise/ region-wise dementia resources pages.

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Dignity Foundation

Dignity Foundation works in the general area of senior care. Dignity has a presence in Mumbai, Pune, Chennai, Kolkata, and Bangalore for senior care and community. It also had a dementia day care in Chennai. Dignity Lifestyle at Neral, Maharashtra, is an assisted care facility for people with Dementia as well as other senior citizens with disability.

Dignity also runs helplines to help elders. It provides a number of services for elders. Contact information for Dignity (Mumbai, Pune, Kolkata, Bangalore, Chennai) can be seen on the city/ region specific pages listed on our city-wise/ region-wise dementia resource pages.

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Helpage India

Helpage India works in the area of elders. It focuses on fighting isolation, poverty, and neglect. Helpage supports many initiatives for elders, including dementia initiatives like ARDSI.  They also have projects on palliative care. The Helpage India website Opens in new window contains information on their projects and also useful downloads like old age home directories.

Helpage India has its head office in Delhi, national offices in Chennai and Kolkata, and over fifty branch offices all over India. The page gives contact information. They also have a map showing various locations and the contact information of each location (on rolling the mouse over) at Contact us: Our Network Opens in new window. Helpage also runs helplines for elders in many cities. Their toll-free helpline number is 1800-180-1253 or you can contact Helpage in your city using the contact information on their map.

Helpage has a dementia day care in Patna (details on Resources for dementia care: Others page. Another useful initiative is their Geriatric Physiotherapy clinics available in some cities Opens in new window, for rehabilitation of persons with mobility problems and also with dementia. Contact them for up-to-date status on these.

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Portal for old age solutions

Old Age Solutions Opens in new window is a portal on Technology Initiative for Disabled and Elderly, an initiative of the Ministry of Science and Technology, and created by AIIMS, Delhi. The portal provides  comprehensive information related to health, nutritional requirements, entertainment, recreation, environment, networking and assistive devices for the ageing. The portal is available in English, Hindi, Tamil, Bengali, Marathi, and Telugu. See the specific language pages for more links for each language: Dementia/ Alzheimer’s Information in Indian Languages

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Dementia day care, respite care and long-term care

The Dementia India Report 2010 mentioned that India has 10 dementia day care centres and 6 residential care facilities suitable for persons with dementia. Since the publication of thereport, some day care centres have been added, and some announced. Some have closed down. Some more residential facilities now accept persons with dementia for stay, rehabilitation, assisted living, extended hospital care, etc.

Please check for the city you are interested in by clicking on the relevant link on the City-wise/ region-wise dementia care information page, for more information on available day care centres, respite care, and other facilities, as per the information available with us.

As per our June 2017 data, there are 14 day cares/ “active ageing” centres in India that accept persons with dementia. These vary in their capacity, charges, whether they provide transport and food, etc.

  • Bangalore has three (Shantinagar, JP Nagar, and Sanjaynagar), all managed by Nightingales Medical Trust/ ARDSI Bangalore Chapter
  • Chennai has two (one by Dignity Chennai, one by DEMCARES)
  • Delhi/ NCR has one (managed by ARDSI Delhi Chapter)
  • Guwahati has one (managed by ARDSI Guwahati Chapter)
  • Hyderabad has two (one by ARDSI Hyderabad-Deccan, one by Nightingales+Red Cross)
  • Kochi has one (by ARDSI Kochi Chapter)
  • Mumbai has two (one by ARDSI Mumbai Chapter, and one called Aarambh by Aaji Care)
  • Patna has one (by Helpage)
  • Thrissur has one (Smruthipadham at Kunnamkulam).

As per our June 2017 data, there are 22 full-time care centres in India that accept persons with dementia. These vary widely in capacity. Costs range from free and for street destitutes to mid-range places and to places costing over a lakh rupees a month. They may accept only dementia persons, dementia and other neuro/ psychiatrist problems, or mixed profiles (normal elders, elders who need help with ADL, elders with dementia, etc.). Some are assisted living designed mainly for early/ mid-stage persons and others are fully equipped for terminal care and placed within the premises of hospitals. Some have multiple types of rooms (single occupant, twin sharing, or dorms with 7-8 persons). Typically, they accept residents for both short and long stay.

  • Delhi/ NCR has 4 places: Chronic Care Dementia Facility (at Faridabad, an ARDSI Delhi franchise), Vardaan Senior Citizen Centre (Malviyanagar), Guru Vishram Vriddh Ashram (Gautampuri), AND Vermeer House (at Gurgaon, by Epoch Elder Care)
  • Mumbai and nearby areas has 5 places: Aarambh (by Aaji Care), A1 Snehanjali-D’Silva AND A1 Snehanjali-Rajodi (both initiatives of Silver Innings), A Silver Amore AND Dignity Lifestyle Neral (has a Special Care Block)
  • Bangalore has 2 centres: Nightingales Centre for Ageing and ALzheimer’s (at Kasturi Nagar) AND Nightingales Trust-Dhanvantri Hospital Society Palliative Care Unit
  • Kolar has 1 centre: ETCM-Nightingales Dementia Care Centre<
  • Hyderabad has 2 centres: Golden Oak (at Shamshabad) AND Kshetra of Heritage
  • Pune has 2 centres: Jagruti Dementia Care (from Jagruti) AND Monet House (of Epoch Elder Care)
  • Ernakulam district, Kerala has 3 centres: Cochin Harmony Home (by ARDSI Kochi), Smruthipadham (joint ARDSI and Kerala Govt), and Signature Aged Care
  • Thrissur district, Kerala has 1 centre: Harmony Home Kottapady
  • Trivandrum district, Kerala has 1 centre:Snehasadanam
  • Calicut district, Kerala has 1 centre: Malabar Harmony Home

Note that such facilities keep getting added/ closed down, and our data may be incomplete/ outdated. Please send in information of changes that you know about, so that the data can be updated. Always contact the place directly and evaluate it for suitability and reliability.

To get some more information and the contact details of these, check the specific city/ region pages: city-wise/ region-wise dementia resource pages. To quickly locate the day and full-time care centres on any city/ region page, look for
24 x 7 Care Home and Day Care.

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Dementia Helplines

The dementia helpline numbers from various cities are listed here. They typically function on working days, working hours. Please note that data keeps changing and numbers may stop functioning/ change. Please send any updates you have on these helplines so that we can keep this data updated. Here’s the available data:

NATIONAL DEMENTIA HELPLINE: 0484-277-5088 (Mon-Sat 10 AM-4 PM). E-mail: ndh@ardsi.org
This operates from Cochin and provides nation-wide support. It is managed by the ARDSI National Office. You can get information on dementia and care here, as well as information on dementia resources in India. (The older number, 0484-280-8088 was discontinued in August 2017)

Other Kerala-based Dementia Helplines: 09846198471 and 09846198786 (managed by ARDSI Registered office, Cochin) and 09846198473 (managed by ARDSI National Office)

Kolkata: 08232014540 (managed by ARDSI Calcutta Chapter), old number, +91 33 32214540, not in use any more

Bangalore: 9379792906 and 9379830631 (managed by ARDSI Bangalore Chapter/ Nightingales Medical Trust)

New Delhi: (011) 29994940,  (011) 64533663 (managed by ARDSI Delhi Chapter)

Hyderabad: (040) 6610 3413 (managed by ARDSI Hyderabad Chapter)

Mumbai: 9029000091 (managed by Silver Innings)

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Elder Helplines:

Some cities also run Elders Helpline/ Senior Citizens’ Helpline, often a cooperation between some NGO working in the area of elder welfare, and the police department. These helplines can be used to report abuse of elders, or assist elders in various ways, as well as get information on legal and other issues that relate to elders. They may also provide information on day care facilities, respite care, home nursing facilities, services that provide attendants and nurses, and old age homes.A major resource is Helpage India, which runs helplines in several cities and has a toll-free number that works across India. See section on Helpage on this page.

Also check the links on our city-wise/ region-wise dementia resource pages for elder helplines of the respective city pages.

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Helplines when distressed/ depressed

Here are some resources (helplines/ email ids) of organizations that provide help to persons who may be depressed/ distressed. Of course, you should contact them when you feel overwhelmed, and not leave off the contacting till you are utterly desperate. Helplines are typically designed to ensure confidential and provide anonymity, but you can confirm this with them before talking.

iCall (TISS) is a nation-wide psychosocial helpline run by TISS (Tata Institute of Social Sciences) where trained counsellors provide information, emotional support and counseling to individuals in psychological distress. iCall functions 14 hours a day, 6 days a week, from 8 AM to 10 PM, Monday to Saturday. The phone number is (022)- 2552-1111, the email id is icall@tiss.edu. Email id: icall@tiss.edu The project is described on the TISS website Opens in new window or their Facebook page Opens in new window.(information confirmed in September 2016)

Vandrevala Foundation Helpline is a 24 hour helpline by trained counsellors and psychiatrists helping callers with a wide range of problems, including depression, anxiety, and thoughts of suicide. These 24-hour helplines are in Mumbai, Surat, and Delhi, but the numbers can be accessed nationwide, and are 1860-266-2345 and 022-2570 6000 . The TV program, Satyamev Jayate also mentioned this foundation’s helpline in its mental health program (season 3) and included a support email id as: help@vandrevalafoundation.com .

Hitguj (BMC) is Brihanmumbai Municipal Corporation’s recently launched mental health helpline which offers telephonic counselling to people on a range of mental health issues. The helpline is Mumbai-based. Most callers call for problems like depression, anxiety, relationship problems, stress and economic uncertainty. Hitguj can be reached at 022-2413-1212 and is supposed to be available 24×7. (news from June 2013).

Samaritans Helpline (The Samaritan Facebook page Opens in new window) has a helplines at (022)-6464 3267 and 022-6565 3267 which work every day from 3 PM to 9 PM. (One earlier number, 32473267, may no longer be working) Their email id is samaritans.helpline@gmail.com. (Update: July 2014)).

Aasra has a 24×7 helpline at (022)-27546669 /7 They suggest using their email id, aasrahelpline@yahoo.com, if the phone line is busy, but there may be a lag in email response. (information confirmed by them in October 2013)).

Sumaitri is a Delhi-based crisis intervention center for depression and support and uses trained counselors. You may contact them on phone or you can visit them. They have a helpline at (011)-23389090 and work Monday to Friday 2pm to 10pm and on Saturday and Sundays 10am to 10pm. The email id is gayatrichadha@hotmail.com, (information confirmed by them in October 2013).

Lifeline Kolkata is Kolkata based. They have a helpline at (033) 2463 7401 / 7432 and their timings are 10:00 am to 6:00 pm from Monday to Saturday. The email id is lifelinekolkata@gmail.com. (information confirmed by them in October 2013).

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Palliative Care resources:

When patients approach end-of-life stages,  caregivers may need to evaluate options and make decisions. Dementia patients do not always benefit from aggressive medical treatment and repeated hospital visits, and the trade-offs are difficult for lay persons to evaluate. A very valuable input at this stage is an understanding of palliative care issues as applicable to dementia. For links that discuss palliative care in the context of dementia, check the palliative care resources on this page.

Palliative care is relatively new in India, and most of the focus has been in cancer/ HIV, and most practitioners may not be experienced in dementia palliation. Some organizations that work in palliative care and also maintain resources/ directories for various states of India are: Indian Institute of Palliative Care Opens in new window, the Thrissur based organizations, Pain & Palliative Care Society, Thrissur Opens in new window (or view the directory of the Pain & Palliative Care Society Opens in new window), and Trivandrum-based Pallium India Opens in new window (or view the Pallium directory Opens in new window). The following may also be useful: Pain and Palliative Care Society, Medical College, Calicut Opens in new window (a WHO-designated “demonstration project”) and the associated Institute of Palliative Medicine Opens in new window

Two useful online directories of palliative care units in India can be viewed at: Directory of Palliative Care Services (Asia Pacific) Opens in new window and Global Directory of Palliative Care Services, Hospices and Organizations Opens in new window (search for Asia, then select India).

Many major hospitals and hospices also have palliative care specialists to help patients suffering from a range of diseases. As mentioned above, when looking for a palliative care specialist, please look for persons with training/ experience of helping persons with dementia.

In addition to the directories available at these sites above, our city-wise/ region-wise pages may include specific links for palliative care in the city.

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Other India-based resources, blogs and communities:

There are also some India-based resources that are predominantly online; these include websites and communities around dementia and/ or caregiving. See our page on online resources for these: : Informational websites on dementia / caregiving.

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Other Resources (Online)

In this Internet age, international online resources and forums on dementia and related care are accessible from anywhere in the world. Family caregivers and other concerned persons in India can use these to learn more about dementia and care, and to read about and share caregiver stories. Click here to get data on International/ online resources: Informational websites on dementia / caregiving.

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For city-specific resources, check this page: City-wise/ region-wise resources.

For International/ online resources, check this page: Informational websites on dementia / caregiving.

For dementia and care related information in Assamese, Bengali, Gujarati, Hindi, Kannada, Konkani, Malayalam, Marathi, Punjabi, Tamil, Telugu, Urdu, check the links on this page: Dementia/ Alzheimer’s Information in Indian Languages. Also see our video resources page for links to videos in Indian languages.

Disclaimer: The resources/ links provided here are intended for information and convenience, and are not in any way intended to be an endorsement for the resource. Also, facilities offered keep changing, so please contact the organizations to get up-to-date information.

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Page/ post last updated on: August 28, 2017

Previous: Resources for dementia and care Next: City-wise/ Region-wise Dementia Care Information

19 thoughts on “Dementia Caregiver Resources across India”

  1. Deccan Chapter of ARDSI has set up an Activity Center for giving respite to care givers. To begin with once a week (Saturdays?) activities have been provided for three hours. This may grow into regular activity if sufficient funds and patronage are available. The idea is to relieve care givers for a brief period.

  2. Alzheimer’s Disease is more prevalent than actually known. I have been a sensitive and devoted caregiver to my AD suffering wife for 6= years and know first hand what it means to live a life of 36 hours a day for years together. (She passed away serenely on 1st July).I know some cases where the families do not like any body know that some one is having AD dementia. They seek treatment without diagnosis and , due to paucity of space, funds and awareness, the patients are more neglected than cared for. I approached the highest offices of my State for any govt initiative but my letters remained even unacknowledged.The same govt is doing a lot for AIDS (glamorous) and Cancer (Drug Companies’ supported) but nothing for AD which is neither and more damaging to the very being of an old person. I share my experiences on http://drbalbirsinghrawat.wordpress.com Please share.

  3. I think that there is no care centre in north india where u can admit the patient permanently on chargeable basis. Its unimaginable that our society has not started to think about it.

    1. Dear Arun , I fully agree with you. I am searching such kind of Centre in Delhi or NCR but not able to find it for my Mother. being a single family atmosphere at home is getting thick and worst day by day.
      Can anyone help me to guide a good rehabilitation centre for old people suffering frm Alzheimer. 9910898671.
      regards,Vrijender Pawar 9910898671

  4. Efforts should be made 1, To declare Dementia and Alxheimer’s patients as Brain Invalid and get for them all the advantages of Invalids.2, Open AD/dementia consultancy services at all govt and private hospitals having Neurology Deptts.3. Celebrate Alzheimer’s Day with a pomp in every school, town and city,4. Help set up Alzheimer’s Volunteer Groups in all such places where there are more than 100 AD/ Dementia patients in 20-25 sq. kilometers. 5. Aim at having an AD Care cum Training Center at every District Hospital where besides care, nurses for AD are given special training.
    Last but of top priority, conduct an ongoing survey of AD patients in every district of the country.
    Please treat these suggestions seriously. Thanks.

  5. I had been handling my father who happens to be an AD patient since the last 2 -3 years. As the disease has progressed it has become more difficult to handle him. and being a single parent having a daughter it is becoming increasingly difficult to cope with the day to day activities and look after my father. i presume the situation is the same in many households through out the country as we are going through a time when we have become nuclear (family). considering the fact that this 21st century would see more and more patients getting afflicted with this disease it becomes imminent that the government, NGO’s etc come forward and take up measures to help out the families and also the patients with the disease. one of the noble ways would be to open up homes where the patients would be taken care of by professionals. as I have gone through it I know that it is very difficult to give proper support to these patients and in a way I feel injustice is being done to them in keeping them home. the suggestions of Dr B S Rawat could be the beginning.

    1. I lost my Dad 2 months ago! He suffered with Alzheimers & it was super difficult to digest the fact that much help was not given from my side as we are living out of country & Dad living with my Brother’s it was hard for me to insist on one on one help to be provided for him etc. Well I am 100% for providing professional help for such very needy, helpless respectable individuals who after all don’t deserved to have such ending after sacrificing their lives for their Children & the society at large. It’s high time we get equipped & get prepared to provide & face the reality to make it less intense. I would love to get a center exclusively for such patients with professional help started in the near future. All is needed is good man power!!! & can do wonders if like minded people can get together!

  6. How many patients are there in India who are suffering from Alzheimer’s? How many of them are getting treated ? No authentic figures are available. So next recourse is to visit medical stores around practicing neurologists in the town. I did this while buying medicines prescribed by the brain doctors for treating the AD of my wife who succumbed to it, two years ago. I found that in my town of 800, 000 population, there are at least 1,200. And new firms are coming up to supply AD meds. Government is still unawares of the plight of the patients and their families, specially the small ones, having one person who is also the earning member of the family . I launched a Alzheimer’s Support Group, hoping young persons would join in and volunteer to visit such families in neighbour hood, buit respaonse is just 89 in 18 months who liked the idea. None has joined so far .

    1. Please try contacting resources specific to your city. You can see links to some city-wise resources here (the pages also include tips for finding other resources): http://dementiacarenotes.in/resources/city-wise/

      Also, please make sure you evaluate the service provider and the attendant properly. Using paid assistants can be tricky, too, and there are discussions on the website on that topic, too (see: http://dementiacarenotes.in/caregivers/toolkit/using-trained-attendants-for-dementia-home-care/ and other pages, like http://dementiacarenotes.in/caregivers/toolkit/using-services/#respite )

  7. My Father died of Alzheimers about 2 years back. I have been trying to get my hands around what I can do for other sufferers of Alzheimers. For a long time, I have been unable even to think clearly about it or speak to my mother about it, because the entire experience was too painful. Finally, this year as time has passed, the pain has numbed and my mother was able to tell me what really helps. She said that there has to be some way of relieving the care givers. Initially, I went to the ARDSI to see if I could help there. However, they all seem to be involved in the informing educating arena. I have also been struggling to find like minded people, and I was delighted to finally reach this website. I can feel Dr BS Rawat’s pain. My plan is, God willing, set up a free care giving service that will provide care to anybody who suffers, regardless of income levels much like the Aravind eye hospital. The financing I intend to initially self finance and then look at raising funds. My plan is to train people from backward regions of Orissa and other states to be care givers. To minimise investment, I do not propose to create any center but provide home care. I also think this could be a good way of generating employment for people. The key of course if giving the right training including psychological profiling to ensure the right people deal with the patients. I have not yet found the right persons who can help put together training. Somehow, I have found Doctors not as empathetic or concerned with care giving.

    I am very keen to hear the inputs of all of you. i would very much like your guidance as to how I can proceed forward.

    1. Dear Masood,

      Thank you for sharing. It is also very inspiring to hear what you want to do. If you are looking for resources to help understand the situation in India or examine general or specific ideas of what you can do, please do see my resource section for volunteers and concerned persons on my personal blog: https://swapnawrites.wordpress.com/resources-for-volunteers-for-dementia-care/

      This section, with around 20 pages, has detailed discussions and suggestions about what can be done, and includes some discussion on training caregivers, too. Perhaps some of the input may be relevant for what you hope to do. It There are also some organizations that try to do similar training of caregivers, and perhaps you can connect with them to get more data and insight about what can be done. I wish you the very best for your intentions. My contact information is available on my blog in case you wish to connect with me.

      Best,
      Swapna Kishore
      Dementia Care Notes

      1. Dear Swapna,

        Thank you for your response. I went through the presentation you put up on slideshare. It was very well done.

        I will contact you separately on your email id.

        regards,

        Masood

  8. Its heart wrenching to hear about all of yours pain.I am going through the same as my father is suffering from Alzheimer’s from last 2 to 3 years.I feel very helpless as not being able to do more about it.There is very little awareness regarding the same in orissa.We are finding it tough to get even good medical support regarding the same.Presently am very worried about my mother as she being the primary care giver is suffering the most.Mr Massod are you planning to set up some centers in Orissa.Is there any good Doc who handles dementia cases.

  9. To all my fellow friends looking after their parents or spouse,
    My dad 85 is in a state of dementia. I am the sole person to look after my father. My father lives 23 kms away from my house in Delhi . He goes changing doc buses and reaches my house everyday. In spite of requesting him to live with me. Sometimes he forgets the mobile and at other times forgets whether to press green or red button to pick the call.
    I have other grave situations at my family home . Can someone advice on residential care in Delhi.
    I am willing to contribute actively to initiate some appropriate residential care in Delhi.
    I have been to ARDSI Tughlakabad and Faridabad. I am not happy with either.
    Suggestion , can the few of us take a residence , flat on rent and start looking after 5-6 patients.

    1. I suggest you cross-post this on our page for Delhi resources, and also consider getting in touch with some in-person support groups and some online support groups/ forums to get in touch with other families who may be able to give practical suggestions or join hands with you. The Delhi page may given you pointers of possible support groups in Delhi. The page is here: http://dementiacarenotes.in/resources/city-wise/dementia-delhi/

      I am also emailing you some more information/ suggestions.

  10. My mother has been suffering from Familial Alzheimer’s since 2012 and now she is only 52 years old. She’s under medicinal treatment but with almost no hope for better. Her early onset of Alzheimer’s has not only shattered her life completely but also giving us a devastating experience to me and my father on a daily basis. She cannot recognize me or my father. Since I stay away from home for work, it is my father who has been taking care of her in every way. We stay upset all the time and seems to have lost the charm of our lives. I am eagerly waiting for any kind of scientific inventions or medications that could reverse the process. I am also looking for any kind of support institution for Alzheimer’s patients. It is absolutely shattering to see my mother slowly deteriorating to the worst. If anyone acquires any kind of information regarding this, please inform me. I would be highly obliged!

    1. So sorry to hear about this, and thanks for sharing. Watching a loved one deteriorate with dementia is very heartbreaking, more so for early onset. I hope you have been able to get in touch with at least some dementia support organizations to be able to get advice as well as connect with other families going through this. Some are listed above, and you can also check our city/ region wise resource pages to see if you find something suitable; see: https://dementiacarenotes.in/resources/city-wise/ and also contact reputed hospitals to see if they can guide you.

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