Dementia Caregiver Resources across India

This page attempts to provide a consolidated list of dementia caregiver resources in India. In case you know of any other resource, or of any error on this page, please let us know by contacting us, or add a comment below. [read disclaimer]

Information specific to various cities/ states is available on the city-wise/ region-wise resource page here. [View page with informational websites on dementia / caregiving]

ARDSI (Alzheimer’s and Related Disorders Society of India)

ARDSI (Alzheimer’s and Related Disorders Society of India) is one of the main resources for dementia caregivers in India. Their website is ardsi.org Opens in new window. Their Facebook presence is at ARDSI National Office FB page Opens in new window.

ARDSI’s activities are intended to help persons with dementia and their families. ARDSI is involved in dementia and caregiving awareness activities, developing services, training family members and professionals, and undertaking research.  ARDSI runs helplines to provide information on Alzheimer’s and caregiving.  ARDSI also provides information for research studies on dementia. The Dementia India report 2010 was released in September 2010, and the Dementia India Strategy 2018 in September 2018. ARDSI also holds annual conferences on dementia.

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ARDSI Chapters in various cities of India

ARDSI has chapters in many cities. Their national office is at Delhi. Their chapters are listed alphabetically (list rechecked August 2020) : Bangalore (Bengaluru), Bhubaneshwar, Calicut (Kozhikode), Chennai, Cochin (Kochi) (also called the Ernakulam Chapter), Coimbatore , Darbhanga , Delhi (also called the New Delhi chapter), Goa, Guwahati, Hyderabad-Deccan, Jaipur , Kolkata (Calcutta), Kottayam, Lucknow , Manipur, Mizoram , Mumbai, Mysore, Pathanamthitta, Pune , Trivandrum (Thiruvananthapuram), Vizag. Please keep in mind that you may get more up-to-date information by calling up the ARDSI National Helpline.

Information on existing chapters and the chapters being revived is available on the respective city pages at city-wise/ region-wise dementia resources pages, and information on the Bhubaneshwar, Darbhanga, Lucknow, and Jaipur chapters is on Resources for dementia care: Others page. Note that some chapters actively offer support, services, training, etc., while others are not active, though they may help if contacted.

Most chapters provide various dementia-related services. Examples are memory clinic, caregiver support groups, home visits for assessment, caregiver training for home carers and for professional carers, day care centres, counseling, and helplines. They hold seminars and workshops. They publicize dementia through awareness programs, functions for the World Alzheimer’s Day, and other events. Patients and caregivers can contact the relevant ARDSI chapter for information and support. Some of the ARDSI chapters maintain websites, though these may not have up-to-date information on events, activities, and services. It is best to contact the organizations to get the latest news.

Some ARDSI chapters are run in coordination with or managed by well-known hospitals of the city, or by major elder care service organizations. For example, ARDSI Bangalore is associated with Nightingales Medical Trust, Bangalore.

Information related to ARDSI chapters can be found in the respective page of the city-wise/ region-wise dementia resources pages.

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Dignity Foundation

Dignity Foundation works in the general area of senior care. Dignity has a presence in Mumbai, Pune, Chennai, Kolkata, and Bangalore for senior care and community. It also had a dementia day care in Chennai. Dignity Lifestyle at Neral, Maharashtra, is an assisted care facility for people with Dementia as well as other senior citizens with disability.

Dignity also runs helplines to help elders. It provides a number of services for elders. Contact information for Dignity (Mumbai, Pune, Kolkata, Bangalore, Chennai) can be seen on the city/ region specific pages listed on our city-wise/ region-wise dementia resource pages.

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Helpage India

Helpage India works in the area of elders. It focuses on fighting isolation, poverty, and neglect. Helpage supports many initiatives for elders, including dementia initiatives like ARDSI.  They also have projects on palliative care. The Helpage India website Opens in new window contains information on their projects and also useful downloads like old age home directories.

Helpage India has its head office in Delhi, national offices in Chennai and Kolkata, and over fifty branch offices all over India. The page gives contact information. They also have a map showing various locations and the contact information of each location. Helpage also runs helplines for elders in many cities. Their toll-free helpline number is 1800-180-1253 or you can contact Helpage in your city using the contact information on their map.

Helpage has a dementia day care in Patna (details on Resources for dementia care: Others page. Another useful initiative is their Geriatric Physiotherapy clinics available in some cities Opens in new window, for rehabilitation of persons with mobility problems and also with dementia. Contact them for up-to-date status on these.

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Portal for old age solutions

Old Age Solutions Opens in new window is a portal on Technology Initiative for Disabled and Elderly, an initiative of the Ministry of Science and Technology, and created by AIIMS, Delhi. The portal provides  comprehensive information related to health, nutritional requirements, entertainment, recreation, environment, networking and assistive devices for the ageing. The portal is available in English and Hindi. (June 2018 update: It earlier also had pages in Tamil, Bengali, Marathi, and Telugu, but these were discontinued)

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Dementia day care, respite care and long-term care

India has very few day care centers and full-time care facilities suitable for dementia compared to the persons with dementia, and these few are almost all in metros. However, this number is increasing slowly. Some places are designed specifically to support persons with dementia (either only for persons with dementia or for elders with special needs including elders with dementia). There are also places that accept persons with dementia even though it is not stated as such in their brochures/ websites. Some places have expanded to include dementia because the elders they were already serving have developed dementia, or to cater to the repeated requests. For example, some residential facilities now accept persons with dementia for stay, rehabilitation, assisted living, extended hospital care, etc. There are also some places that claim to support dementia though they don’t actually have the required trained staff or infrastructure or experts.

Due to the various COVID 19-related restrictions, dementia day cares were closed down. Some care homes were also impacted as staff was unable to report to work. Operations are now being resumed slowly as restrictions are being relaxed, but please contact the organizations to find the status.

 

Also note that evaluation of any day care, residential care, or any other service should include asking about measures being taken to protect the person with dementia from infection while providing suitable care. Families will need to be satisfied that suitable procedures are being implemented.

Whenever you are considering a day care or full-time care (short term or long term), it is essential that you do proper evaluation for any place for suitability, reliability, etc. Some suggestions for this are available at Using various dementia/ home care services. For available day care centers, respite care, and other facilities, as per the information available with us, please see the relevant link on the City-wise/ region-wise dementia care information page..

DAY CARE CENTRES: As per our current data, the following day cares/ “active ageing” centres in India accept persons with dementia. These vary in their capacity, charges, whether they provide transport and food, etc. The list below includes confirmed names as well as unconfirmed listings received from families and volunteers.

FULL-TIME CARE CENTRES:As per our current data, the following full-time care centres in India accept persons with dementia. These vary widely in capacity. Costs range from free and for street destitutes to mid-range places and to places costing over a lakh rupees a month. They may accept only dementia persons, dementia and other neuro/ psychiatrist problems, or mixed profiles (normal elders, elders who need help with ADL, elders with dementia, etc.). Some are assisted living designed mainly for early/ mid-stage persons and others are fully equipped for terminal care and placed within the premises of hospitals. Some have multiple types of rooms (single occupant, twin sharing, or dorms with 7-8 persons). Typically, they accept residents for both short and long stay. The list below includes confirmed names as well as unconfirmed listings received from families and volunteers.

  • Ahmedabad: Papaya Care (See Gujarat page for details)
  • Bangalore: Two residential centres by Nightingales Medical Trust: Nightingales Centre for Ageing & Alzheimer’s (NCAA) and Nightingales Trust – Tanya Mathias Elder care Centre. AND Nikisa Dementia Village. Additional unconfirmed listings received: AdvantAGE Senior Care, Asha Jeevan, Cadabams Rehab, Katherine Nivas, Nisarga Prabhudalaya, Omashram, Priaashrya, and Smile Elderly Care. Another care home, meant for destitute persons, which may accept persons with dementia is Sandhya Suraksha(See Bangalore/ Kolar/ Mangalore page for details)
  • Chennai: No confirmed details available for any full-time care home. Unconfirmed listings received for three care homes.(See Chennai/ Coimbatore page for details)
  • Coimbatore: Unconfirmed listing received for two care homes.(See Chennai/ Coimbatore page for details)
  • Delhi/ NCR: Chronic Care Dementia Facility (at Faridabad, an ARDSI Delhi franchise), Vardaan Senior Citizen Centre (Malviyanagar), Guru Vishram Vriddh Ashram (Gautampuri), Vermeer House and Frida House (both at Gurgaon, by Epoch Elder Care), AND residential care of Hope ek ASHA. (See Delhi/ NCR page for details)
  • Ernakulam district, Kerala: Cochin Harmony Home (by ARDSI Kochi), Smruthipadham (joint ARDSI and Kerala Govt), and Signature Aged Care (See Kerala page for details)
  • Hyderabad: Golden Oak (at Shamshabad) AND Kshetra of Heritage (See Hyderabad page for details)
  • Kolar: ETCM-Nightingales Dementia Care Centre(See Bangalore/ Kolar / Mangalore page for details)
  • Mangalore: Susheg Jivith (See Bangalore/ Kolar / Mangalore page for details)
  • Mysore: One unconfirmed listing received for Reverb Life Care. See See Bangalore/ Kolar/ Mangalore page for details)
  • Mumbai and nearby areas: Aarambh-Powai, Aarambh-Khargar and Aarambh-Thane (by Aaji Care), A1 Snehanjali-D’Silva AND A1 Snehanjali-Rajodi (both Silver Innings), A Silver Amore, Dignity Lifestyle Neral (has a Special Care Block), Jagruti Rehab Taloja, and Shree Rajendrakumar Agarwal Hospital (Anand Rehabilitation). Additional unconfirmed listings received for Golden Care Retirement Homes and Prof. Ram Kapse Senior Citizen Care Centre (Palghar).(See this page for details)
  • Pune : Jagruti Dementia Care (from Jagruti), Monet House (of Epoch Elder Care), Tapas Elder Care. and Madhurbhav (AJ Foundation)(See this page for details)
  • Kozhikode/ Calicut district, Kerala: Malabar Harmony Home (See Kerala page for details)
  • Thrissur district, Kerala: Dementia Respite Care Centre (Harmony Home) (See Kerala page for details)
  • Trivandrum district, Kerala:Snehasadanam (please check if they have resumed operations after COVID lockdown), Anugraham Neurocare (See Kerala page for details)
  • Valsad: Unconfirmed listing: it is possible that dementia persons can be admitted at Anand Care Home (See Gujarat page for details)

In addition to providing more information and contact data on these, our city/ state pages also list other city/ state specific dementia resources.Check the specific city/ region pages: city-wise/ region-wise dementia resource pages.

Note that such facilities keep getting added/ closed down, and our data may be incomplete/ outdated. Also, quality of the listed places may change with time (improve or deteriorate). Please send in information of changes that you know about, so that the data can be updated. Always contact the place directly and evaluate it for suitability and reliability. Note that any information provided on any resource is only for convenience and is not an endorsement of any kind.

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Dementia Helplines

The national helpline, managed by ARDSI is:

NATIONAL DEMENTIA HELPLINES: 098461 98471 | 098461 98473 | 098461 98786 | info@ardsi.org

Many other dementia entities also list helplines. Some of these provide information on dementia and answer queries related to dementia and care, but most helplines are more focused on information on the dementia services and facilities by the entity running the helpline, or for fixing an appointment for more detailed consultation. If you are looking for information on dementia and care, please see this website. Also, you can use our city-wise/ region-wise dementia resource pages and contact individual entities listed there. Larger entities, and ARDSI chapters are more likely to be able to help with general information on dementia.

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Elder Helplines:

Some cities also run Elders Helpline/ Senior Citizens’ Helpline, often a cooperation between some NGO working in the area of elder welfare, and the police department. These helplines can be used to report abuse of elders, or assist elders in various ways, as well as get information on legal and other issues that relate to elders. They may also provide information on day care facilities, respite care, home nursing facilities, services that provide attendants and nurses, and old age homes.A major resource is Helpage India, which runs helplines in several cities and has a toll-free number that works across India. See section on Helpage on this page.

Also check the links on our city-wise/ region-wise dementia resource pages for elder helplines of the respective city pages.

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Helplines when distressed/ depressed

Here are some resources (helplines/ email ids) of organizations that provide help to persons who may be depressed/ distressed. Helplines are typically designed to ensure confidential and provide anonymity, but you can confirm this with them before talking.

Please contact a helpline when you feel overwhelmed, and do not postpone this contacting till you are utterly desperate. Also, if you can’t get through to a helpline, please try another helpline or try after some time. Note that helplines sometimes have poorer responses because of problems in funding/ volunteer availability, so please don’t give up!!

The list below is an alphabetically arranged selection of what seem to be more active helplines; however, to emphasize again, you need may need to try multiple options to reach one that works for you. Suggestions and feedback are welcome. Also A larger list of helplines of India is available from Aasra; view it at HELPLINE NUMBERS Opens in new window

Aasra has a 24×7 helpline at 91-9820466726 . Email: aasrahelpline@yahoo.com. Site: http://www.aasra.info (Also see above for their directory of helplines in India)

COOJ Mental Health Foundation, a Goa initiative. Call: +91 832 225 2525, 1 to 7 pm, Monday to Friday. Website: cooj.co.in Facebook page Opens in new window. E-counselling email: youmatterbycooj@gmail.com. Also, number for inquiries: 9075391756

iCall (TISS) is run by TISS (Tata Institute of Social Sciences). Call: (022)- 2552-1111, 8 AM to 10 PM, Monday to Saturday. Email: icall@tiss.edu, Site: icallhelpline.org Their Facebook page Opens in new window. A resource to help people find counselors in India along with information on each counselor, created as part of a crowd-sourcing initiative by iCall, can be viewed at iCALL’s crowdsourced list of Mental Health Professionals We Can TrustOpens in new window

Samaritans Helpline (The Samaritan Facebook page Opens in new window) lists its helplines as +91 8422984528/ +91 8422984529/ +91 8422984530, 3 PM to 9 PM, all days. (Numbers effective from March, 2018) Email: talk2samaritans@gmail.com. .

Sumaitri is a Delhi-based crisis intervention center for depression. Call: 011-2338 9090 (Mon-Fri 2pm to 10pm and Sat-Sun 10am to 10pm. Email: feelingsuicidal@sumaitri.net, Site: sumaitri.net .

Vandrevala Foundation Helpline is a 24 hour helpline. Call: 1860-266-2345, 1800-233-3330. Email: help@vandrevalafoundation.com< (email response time 48 hours) , Site: vandrevalafoundation.com .

Others (older data, unable to reconfirm)

Lifeline Foundation is Kolkata based. Responses on their FB page https://www.facebook.com/Lifeline-Foundation-189171931156405/ have been slow and delayed and the website listed there is defunct, but you can try and call 033-2463-7437

Saath is Ahmedabad based. Call +91 79 26305544/26300222, 1pm-7pm, all days. Email: saath12@yahoo.com
Facebook page Opens in new window

Hitguj (BMC) is Brihanmumbai Municipal Corporation initiative. (current state of project not known). Call 022-2413-1212, 24 x 7. Website: hitgujhelpline.wordpress.com .

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Palliative Care resources:

When patients approach end-of-life stages,  caregivers may need to evaluate options and make decisions. Dementia patients do not always benefit from aggressive medical treatment and repeated hospital visits, and the trade-offs are difficult for lay persons to evaluate. A very valuable input at this stage is an understanding of palliative care issues as applicable to dementia. For links that discuss palliative care in the context of dementia, check the palliative care resources on this page.

Palliative care is relatively new in India, and most of the focus has been in cancer/ HIV, and most practitioners may not be experienced in dementia palliation. Some organizations that work in palliative care and also maintain resources/ directories for various states of India are: Indian Institute of Palliative Care Opens in new window, the Thrissur based organizations, Pain & Palliative Care Society, Thrissur Opens in new window (district-wise directories also available at site), and Trivandrum-based Pallium India Opens in new window (or view the Pallium directory Opens in new window). The following may also be useful: Pain and Palliative Care Society, Medical College, Calicut Opens in new window (a WHO-designated “demonstration project”) (Dec 2018 update: site is giving some problems) and the associated Institute of Palliative Medicine Opens in new window

Two useful online directories of palliative care units in India can be viewed at: Directory of Palliative Care Services (Asia Pacific) Opens in new window and Global Directory of Palliative Care Services, Hospices and Organizations Opens in new window (search for Asia, then select India).

Many major hospitals and hospices also have palliative care specialists to help patients suffering from a range of diseases. As mentioned above, when looking for a palliative care specialist, please look for persons with training/ experience of helping persons with dementia.

In addition to the directories available at these sites above, our city-wise/ region-wise pages may include specific links for palliative care in the city.

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Other India-based resources, blogs and communities:

There are also some India-based resources that are predominantly online; these include websites and communities around dementia and/ or caregiving. See our page on online resources for these: : Informational websites on dementia / caregiving.

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Other Resources (Online)

In this Internet age, international online resources and forums on dementia and related care are accessible from anywhere in the world. Family caregivers and other concerned persons in India can use these to learn more about dementia and care, and to read about and share caregiver stories. Click here to get data on International/ online resources: Informational websites on dementia / caregiving.

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For city-specific resources, check this page: City-wise/ region-wise resources.

For International/ online resources, check this page: Informational websites on dementia / caregiving.

For dementia and care related information in Assamese, Bengali, Gujarati, Hindi, Kannada, Konkani, Malayalam, Marathi, Punjabi, Tamil, Telugu, Urdu, check the links on this page: Dementia/ Alzheimer’s Information in Indian Languages. Also see our video resources page for links to videos in Indian languages.

Disclaimer: The resources/ links provided here are intended for information and convenience, and are not in any way intended to be an endorsement for the resource. Also, facilities offered keep changing, so please contact the organizations to get up-to-date information.

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