This page attempts to provide a consolidated list of dementia caregiver resources in India. In case you know of any other resource, or of any error on this page, please let us know by contacting us, or add a comment below. [read disclaimer]
Information specific to various cities/ states is available on the city-wise/ region-wise resource page here. [View page with informational websites on dementia / caregiving]
- ARDSI (Alzheimer’s and Related Disorders Society of India).
- ARDSI Chapters in various cities of India.
- Dignity Foundation.
- Helpage India.
- Portal for old age solutions.
- Dementia Day Care and Respite care.
- Dementia Helplines.
- Elder Helplines.
- Helplines when distressed/ depressed.
- Palliative care resources.
- Other India-based resources, blogs and communities.
- Online resources.
ARDSI (Alzheimer’s and Related Disorders Society of India) is one of the main resources for dementia caregivers in India. Their website is ardsi.org Opens in new window. Their Facebook presence is at ARDSI National Office FB page Opens in new window.
ARDSI’s activities are intended to help persons with dementia and their families. ARDSI is involved in dementia and caregiving awareness activities, developing services, training family members and professionals, and undertaking research. ARDSI runs helplines to provide information on Alzheimer’s and caregiving. ARDSI also provides information for research studies on dementia. The Dementia India report 2010 was released in September 2010, and the Dementia India Strategy 2018 in September 2018. ARDSI also holds annual conferences on dementia.
ARDSI has chapters in many cities. Their national office is at Delhi. Their chapters are listed alphabetically (list rechecked August 2020) : Bangalore (Bengaluru), Bhubaneshwar, Calicut (Kozhikode), Chennai, Cochin (Kochi) (also called the Ernakulam Chapter), Coimbatore , Darbhanga , Delhi (also called the New Delhi chapter), Goa, Guwahati, Hyderabad-Deccan, Jaipur , Kolkata (Calcutta), Kottayam, Lucknow , Manipur, Mizoram , Mumbai, Mysore, Pathanamthitta, Pune , Trivandrum (Thiruvananthapuram), Vizag. Please keep in mind that you may get more up-to-date information by calling up the ARDSI National Helpline.
Information on existing chapters and the chapters being revived is available on the respective city pages at city-wise/ region-wise dementia resources pages, and information on the Bhubaneshwar, Darbhanga, Lucknow, and Jaipur chapters is on Resources for dementia care: Others page. Note that some chapters actively offer support, services, training, etc., while others are not active, though they may help if contacted.
Most chapters provide various dementia-related services. Examples are memory clinic, caregiver support groups, home visits for assessment, caregiver training for home carers and for professional carers, day care centres, counseling, and helplines. They hold seminars and workshops. They publicize dementia through awareness programs, functions for the World Alzheimer’s Day, and other events. Patients and caregivers can contact the relevant ARDSI chapter for information and support. Some of the ARDSI chapters maintain websites, though these may not have up-to-date information on events, activities, and services. It is best to contact the organizations to get the latest news.
Some ARDSI chapters are run in coordination with or managed by well-known hospitals of the city, or by major elder care service organizations. For example, ARDSI Bangalore is associated with Nightingales Medical Trust, Bangalore.
Information related to ARDSI chapters can be found in the respective page of the city-wise/ region-wise dementia resources pages.
Dignity Foundation works in the general area of senior care. Dignity has a presence in some cities for senior care and community. It also had a dementia day care in Chennai. Dignity Lifestyle at Neral, Maharashtra, is an assisted care facility for people with Dementia as well as other senior citizens with disability.
Dignity also runs helplines to help elders. It provides a number of services for elders. Contact information for local Dignity branches can be seen on the city/ region specific pages listed on our city-wise/ region-wise dementia resource pages.
Helpage India works in the area of elders. It focuses on fighting isolation, poverty, and neglect. Helpage supports many initiatives for elders, including dementia initiatives like ARDSI. They also have projects on palliative care. The Helpage India website Opens in new window contains information on their projects and also useful downloads like old age home directories.
Helpage India has its head office in Delhi, national offices in Chennai and Kolkata, and over fifty branch offices all over India. The page gives contact information. They also have a map showing various locations and the contact information of each location. Helpage also runs helplines for elders in many cities. Their toll-free helpline number is 1800-180-1253 or you can contact Helpage in your city using the contact information on their map.
Helpage has a dementia day care in Patna (details on Resources for dementia care: Others page. Another useful initiative is their Geriatric Physiotherapy clinics available in some cities Opens in new window, for rehabilitation of persons with mobility problems and also with dementia. Contact them for up-to-date status on these.
Old Age Solutions Opens in new window is a portal on Technology Initiative for Disabled and Elderly, an initiative of the Ministry of Science and Technology, and created by AIIMS, Delhi. The portal provides comprehensive information related to health, nutritional requirements, entertainment, recreation, environment, networking and assistive devices for the ageing. The portal is available in English and Hindi. (June 2018 update: It earlier also had pages in Tamil, Bengali, Marathi, and Telugu, but these were discontinued)
India has very few day care centers and full-time care facilities suitable for dementia compared to the persons with dementia, and these few are almost all in metros. However, this number is increasing slowly. Some places are designed specifically to support persons with dementia (either only for persons with dementia or for elders with special needs including elders with dementia). There are also places that accept persons with dementia even though it is not stated as such in their brochures/ websites. Some places have expanded to include dementia because the elders they were already serving have developed dementia, or to cater to the repeated requests. For example, some residential facilities now accept persons with dementia for stay, rehabilitation, assisted living, extended hospital care, etc. There are also some places that claim to support dementia though they don’t actually have the required trained staff or infrastructure or experts.
DAY CARE CENTRES: There are some day cares/ “active ageing” centres in India that accept persons with dementia. Some are exclusively for persons with dementia, some have a mixed profile. Day cares vary in their capacity, charges, whether they provide transport and food, etc.
FULL-TIME CARE CENTRES: There are also full-time care centres in India that accept persons with dementia. Full time care homes vary widely in capacity. Costs range from free and for destitute persons picked up from streets to mid-range places and to places costing over a lakh rupees a month. They may accept only dementia persons, dementia and other neuro/ psychiatrist problems, or mixed profiles (normal elders, elders who need help with ADL, elders with dementia, etc.). Some are assisted living designed mainly for early/ mid-stage persons and others are fully equipped for terminal care and placed within the premises of hospitals. Some have multiple types of rooms (single occupant, twin sharing, or dorms with 7-8 persons). Typically, they accept residents for both short and long stay.
Whenever you are considering a day care or full-time care (short term or long term), it is essential that you do proper evaluation for any place for suitability, reliability, etc. Some suggestions for this are available at Using various dementia/ home care services.
Data available with us on day care centers, respite care, and other facilities is collated on a set of pages that are listed on the City-wise/ region-wise dementia care information page. In addition to providing more information and contact data on these, our city/ state pages also list other city/ state specific dementia resources. The various pages available with detailed resource information are:
- Ahmedabad, Valsad (Gujarat).
- Bangalore, Mysore, Mangalore, Kolar (Karnataka).
- Chennai, Coimbatore (Tamil Nadu).
- Delhi/ NCR.
- Guwahati, Imphal, Aizawl (North-Eastern States).
- Hyderabad and other cities in Andhra Pradesh/ Telengana.
- Kerala cities.
- Kolkata (West Bengal).
- Mumbai and Greater Mumbai (Maharashtra).
- Pune (Maharashtra).
- OTHERS: Resources for dementia care: Upcoming/ Others in cities (currently Bhopal, Bhubaneswar, Darbhanga, Jaipur, Kanpur, Lucknow, Nagpur, Patna, Raipur, Varanasi).
Note that facilities keep getting added/ closed down, and our data may be incomplete/ outdated. Also, quality of the listed places may change with time (improve or deteriorate). Please send in information of changes that you know about, so that the data can be updated. Always contact the place directly and evaluate it for suitability and reliability. Note that any information provided on any resource is only for convenience and is not an endorsement of any kind.
The national helpline, managed by ARDSI is:
NATIONAL DEMENTIA HELPLINES: 098461 98471 | 098461 98473 | 098461 98786 | email@example.com
Many other dementia entities also list helplines. Some of these provide information on dementia and answer queries related to dementia and care, but most helplines are more focused on information on the dementia services and facilities by the entity running the helpline, or for fixing an appointment for more detailed consultation. If you are looking for information on dementia and care, please see this website. Also, you can use our city-wise/ region-wise dementia resource pages and contact individual entities listed there. Larger entities, and ARDSI chapters are more likely to be able to help with general information on dementia.
Some cities also run Elders Helpline/ Senior Citizens’ Helpline, often a cooperation between some NGO working in the area of elder welfare, and the police department. These helplines can be used to report abuse of elders, or assist elders in various ways, as well as get information on legal and other issues that relate to elders. They may also provide information on day care facilities, respite care, home nursing facilities, services that provide attendants and nurses, and old age homes.A major resource is Helpage India, which runs helplines in several cities and has a toll-free number that works across India. See section on Helpage on this page.
Also check the links on our city-wise/ region-wise dementia resource pages for elder helplines of the respective city pages.
Here are some resources (helplines/ email ids) of organizations that provide help to persons who may be depressed/ distressed. Helplines are typically designed to ensure confidential and provide anonymity, but you can confirm this with them before talking.
Please contact a helpline when you feel overwhelmed, and do not postpone this contacting till you are utterly desperate. Also, if you can’t get through to a helpline, please try another helpline or try after some time. Note that helplines sometimes have poorer responses because of problems in funding/ volunteer availability, so please don’t give up!!
The list below is an alphabetically arranged selection of what seem to be more active helplines; however, to emphasize again, you need may need to try multiple options to reach one that works for you. Suggestions and feedback are welcome. Also A larger list of helplines of India is available from Aasra; view it at HELPLINE NUMBERS Opens in new window
Aasra has a 24×7 helpline at 91-9820466726 . Email: firstname.lastname@example.org. Site: http://www.aasra.info (Also see above for their directory of helplines in India)
COOJ Mental Health Foundation, a Goa initiative. Call: +91 832 225 2525, 1 to 7 pm, Monday to Friday. Website: cooj.co.in Facebook page Opens in new window. E-counselling email: email@example.com. Also, number for inquiries: 9075391756
iCall (TISS) is run by TISS (Tata Institute of Social Sciences). Call: (022)- 2552-1111, 8 AM to 10 PM, Monday to Saturday. Email: firstname.lastname@example.org, Site: icallhelpline.org Their Facebook page Opens in new window. A resource to help people find counselors in India along with information on each counselor, created as part of a crowd-sourcing initiative by iCall, can be viewed at iCALL’s crowdsourced list of Mental Health Professionals We Can TrustOpens in new window
Samaritans Helpline (The Samaritan Facebook page Opens in new window) lists its helplines as +91 8422984528/ +91 8422984529/ +91 8422984530, 3 PM to 9 PM, all days. (Numbers effective from March, 2018) Email: email@example.com. .
Sumaitri is a Delhi-based crisis intervention center for depression. Call: 011-2338 9090 (Mon-Fri 2pm to 10pm and Sat-Sun 10am to 10pm. Email: firstname.lastname@example.org, Site: sumaitri.net .
Vandrevala Foundation Helpline is a 24 hour helpline. Call: 1860-266-2345, 1800-233-3330. Email: email@example.com< (email response time 48 hours) , Site: vandrevalafoundation.com .
Others (older data, unable to reconfirm)
Lifeline Foundation is Kolkata based. Responses on their FB page https://www.facebook.com/Lifeline-Foundation-189171931156405/ have been slow and delayed and the website listed there is defunct, but you can try and call 033-2463-7437
Saath is Ahmedabad based. Call +91 79 26305544/26300222, 1pm-7pm, all days. Email: firstname.lastname@example.org
Facebook page Opens in new window
Hitguj (BMC) is Brihanmumbai Municipal Corporation initiative. (current state of project not known). Call 022-2413-1212, 24 x 7. Website: hitgujhelpline.wordpress.com .
When patients approach end-of-life stages, caregivers may need to evaluate options and make decisions. Dementia patients do not always benefit from aggressive medical treatment and repeated hospital visits, and the trade-offs are difficult for lay persons to evaluate. A very valuable input at this stage is an understanding of palliative care issues as applicable to dementia. For links that discuss palliative care in the context of dementia, check the palliative care resources on this page.
Palliative care is relatively new in India, and most of the focus has been in cancer/ HIV, and most practitioners may not be experienced in dementia palliation. Some organizations that work in palliative care and also maintain resources/ directories for various states of India are: Indian Institute of Palliative Care Opens in new window, the Thrissur based organizations, Pain & Palliative Care Society, Thrissur Opens in new window (district-wise directories also available at site), and Trivandrum-based Pallium India Opens in new window (or view the Pallium directory Opens in new window). The following may also be useful: Pain and Palliative Care Society, Medical College, Calicut Opens in new window (a WHO-designated “demonstration project”) (Dec 2018 update: site is giving some problems) and the associated Institute of Palliative Medicine Opens in new window
Two useful online directories of palliative care units in India can be viewed at: Directory of Palliative Care Services (Asia Pacific) Opens in new window and Global Directory of Palliative Care Services, Hospices and Organizations Opens in new window (search for Asia, then select India).
Many major hospitals and hospices also have palliative care specialists to help patients suffering from a range of diseases. As mentioned above, when looking for a palliative care specialist, please look for persons with training/ experience of helping persons with dementia.
In addition to the directories available at these sites above, our city-wise/ region-wise pages may include specific links for palliative care in the city.
There are also some India-based resources that are predominantly online; these include websites and communities around dementia and/ or caregiving. See our page on online resources for these: : Informational websites on dementia / caregiving.
In this Internet age, international online resources and forums on dementia and related care are accessible from anywhere in the world. Family caregivers and other concerned persons in India can use these to learn more about dementia and care, and to read about and share caregiver stories. Click here to get data on International/ online resources: Informational websites on dementia / caregiving.
For city-specific resources, check this page: City-wise/ region-wise resources.
For International/ online resources, check this page: Informational websites on dementia / caregiving.
For dementia and care related information in Assamese, Bengali, Gujarati, Hindi, Kannada, Konkani, Malayalam, Marathi, Punjabi, Tamil, Telugu, Urdu, check the links on this page: Dementia/ Alzheimer’s Information in Indian Languages. Also see our video resources page for links to videos in Indian languages.
Disclaimer: The resources/ links provided here are intended for information and convenience, and are not in any way intended to be an endorsement for the resource. Also, facilities offered keep changing, so please contact the organizations to get up-to-date information.