কোভিড ১৯ এর সময়ে ডিমেনশিয়া কেয়ার: An explanation in Bengali of some key points for dementia care during COVID 19 can be seen on the ARDSI Kolkata site home page Opens in new window (please scroll down)
- From Alzheimer’s Association of Bangladesh: full-fledged website and caregiver guide in Bengali
- From ARDSI Kolkata Chapter: Bengali books. Also, helpline and in-person support. Also, guidance for care in COVID times.
- From Old age/ Mental Health Portals from India: short introductions for dementia/ Alzheimer’s Disease
- From other Alzheimer’s Associations worldwide: short introductions for dementia/ Alzheimer’s Disease
- Videos in Bengali (Youtube)
- Bengali book explaining dementia to children
- Also see: Other possible sources for Bengali information
From Alzheimer’s Association of Bangladesh: full-fledged website and caregiver guide in Bengali
The Alzheimer’s Association of Bangladesh website (alzheimerbd.org) is a comprehensive online resource for dementia/ care information in Bengali. The site is under reconstruction and giving problems, but the resources is had available are also available as archived pages and still available, as per links share below. (The site was earlier at Alzheimerbd.com, moved to new web address in April 2019)
This website has several pages in Bengali that explain dementia and related caregiving. Topics covered include:
- The 10 signs of dementia (as simple pictures and text): ডিমেনশিয়ার ১০টি প্রধান লক্ষণ Opens in new window
- About dementia, its symptoms, types, diagnosis, risk factors, treatment. etc.: ডিমেনশিয়া কি? Opens in new window, ডিমেনশিয়ার প্রকারভেদ Opens in new window , রোগ-সনাক্তকরণ বা ডায়াগনোসিস Opens in new window, ডিমেনশিয়ার প্রাথমিক লক্ষণ সমূহ Opens in new window, ঝুঁকিপূর্ণ বিষয় সমুহ Opens in new window,ডিমেনশিয়ার চিকিৎসা Opens in new window.
- Care for dementia topics: who gives care, what does care involve, stress, self-care, etc: ডিমেনশিয়ায় পরিচর্যাকারী কে ? Opens in new window, ডিমেনশিয়া আক্রান্ত ব্যক্তির সাথে বসবাস এবং তাদের যত্ন নেওয়া Opens in new window, পরিচর্যাকারীর দৈহিক ও মানসিক চাপ Opens in new window, পরিচর্যাকারীর নিজের যত্ন Opens in new window.
- Some frequently asked questions, shared voices, etc: ডিমেনশিয়া সংক্রান্ত কতিপয় প্রশ্নের উত্তর Opens in new window, ডিমেনশিয়া কেয়ারগিবারস ভয়েস Opens in new window
Alzheimer’s Association of Bangladesh also has a Bengali caregiver help guide (PDF file) prepared with the help of Alzheimer’s Disease International (ADI) and the World Health Organisation (WHO) and released in Sept 2016. This guide is available with their permission on our site, here: Dementia Poricharjakarir Sohaika (Help for Caregivers) (PDF file) . (You can also view it in the player below)
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Open in new tab From ARDSI Kolkata Chapter: Bengali books. Also, helpline and in-person support. Also, guidance for care in COVID times.
কোভিড ১৯ এর সময়ে ডিমেনশিয়া কেয়ার: An explanation in Bengali of some key points for dementia care during COVID 19 can be seen on the ARDSI Kolkata site home page Opens in new window (please scroll down)
The Calcutta chapter of ARDSI (Alzheimer’s and Related Disorders Society of India) has two audio clips in Bengali, available from its home page at ardsikolkata.org Opens in new window. One is on What is dementia (ডিমেনশিয়া কি ) (1:43 minutes) and one on dementia care tips (14:22 minutes).
It has also published books in Bengali.
Dementia Paricharyya ডিমেনশিয়ায় পরিচর্যা (Ed. Nilanjana Maulik): This slender, modestly-priced Bengali book explains day-to-day dementia care to caregivers. Topics covered include description of dementia, Alzheimer’s Disease, comparison of dementia with aging, how to interact with someone who has dementia, explanations and tips for several topics like communication, bathing and cleaning, various daily activities, healthy living, and also problems like depression, hallucinations and delusions. Coverage is good, but the book does not have any illustrations. Available through the ARDSI Kolkata chapter. See their pageOpens in new window.
Dementia Paricharyya (Part 2) ডিমেনশিয়ায় পরিচর্যা (দ্বিতীয় ভাগ)( (Ed. Nilanjana Maulik): This is part 2 of the caregiver manual from ARDSI Kolkata. It expands on topics like communication, general/personal care, behaviour, pain management, falls, wandering, home safety, emergency preparedness, outings, medication management, abuse & neglect, hospital stay, and end of life care. Available through the ARDSI Kolkata chapter.See their pageOpens in new window.
The Chapter may also be having printed booklets on dementia/ care in Bengali.
ARDSI Kolkata is an active chapter working to support families with dementia. They have a helpline, and provide information, support, and counselling in Bengali. Contact them using their Dementia Helpline at 08232014540 Monday to Saturday, 10:00 am to 4:00 pm, or email them at ardsikolkata@yahoo.co.in. More details on them are available at: Resources for dementia care: Kolkata (West Bengal)
From Old age/ Mental Health Portals from India: short introductions for dementia/ Alzheimer’s Disease
Old Age Solutions is a portal with information and resources for the elderly (from the Govt. of India and AIIMS). It used to have a Bengali version, but this has been discontinued in 2018.
White Swan Foundation, a website on mental health, has a Bengali section. This includes pages on dementia and Alzheimer’s Dementia ডিমেনশিয়া Opens in new window, Alzheimer’s Disease অ্যালঝাইমার্স ডিসিস্ Opens in new window, and Understanding Alzheimer’s Disease অ্যালঝাইমার্স ডিসিস্ বলতে কী বোঝায়? Opens in new window.
From other Alzheimer’s Associations worldwide: short introductions for dementia/ Alzheimer’s Disease
Some other countries that have Bengali-speaking residents have also published dementia/ Alzheimer’s and care information in Bengali to help the residents understand about dementia and care, and so that these residents know about the resources/ services these countries have to help families coping with dementia (Note that the resource information in these booklets is specific to the country that published the booklet).
- Booklet on dementia from Alzheimer’s Society (UK) (PDF file)Opens in new window
- Dementia Guide (Bengali) from Alzheimer’s Society (UK) (PDF file) Opens in new window
- Dementia booklet in Bengali (PDF file) from Scotland Opens in new window.
Videos in Bengali (Youtube)
Some dementia organizations in the UK have created videos dubbed in various Indian languages to help their South Asian resident understand dementia and its symptoms. These are basic, useful videos. However, the services and support they mention refer to the UK—for India, you will need to locate suitable resources here.
- (From Alzheimer’s Society, UK): A small 3.5 minute introduction on dementia and its symptoms (dubbed in Bengali): Bengali – Introduction to dementia from Atiq Hassan, Dementia Adviser. View it here Opens in new window.
- (From Birmingham and Solihull Mental Health NHS Foundation Trust , UK) “Living Well with Dementia – Bengali version” is a longer video of 33:05 minutes with the voices dubbed in Bengali (subtitles are English). It describes dementia and its symptoms and its impact on families and how to cope. Includes personal stories. View: Living Well with Dementia – Bengali version Opens in new window.
- (From Alzheimer’s Society, UK): Two personal story videos, dubbed in Bengali, each around 3.5 to 4 minutes long: Bengali – Prabhakant and Kanta Patel – dementia Opens in new window and Bengali – Stan and Denise Lintern – dementia Opens in new window.
- (From Alzheimer’s Society, UK): “A Dementia Guide” is a dubbed and subtitled long video intended for persons recently diagnosed with dementia and in relatively early stages of dementia. It helps them understand the diagnosis and plan for their future. It includes information on support, resources and services available in the UK. Has several personal stories. Some information may be useful for family caregivers living in India. View: Bengali/ Sylheti version of A Dementia Guide< Opens in new window.
Or view them as a playlist below:
Bengali book explaining dementia to children
Tannar Dimma তান্নার দিম্মা (Indrani Barua): This is a children’s story,giving a grandchild’s perspective of a grandmother with dementia. The child first notices the differences in the person, and later, after understanding how dementia is affecting the grandparent, begins doing a number of small things to make life easier for the grandparent while also finding ways to retain the quality of life – whether by walks (with name tags for safety) or gardening or working in the kitchen(in safe ways). Sensitively written, very suitable for explaining dementia to children. Available on Amazon.in as paperback and Kindle ebook. Free on Kindle Unlimited.
Also see: Other possible sources for Bengali information
Information on some organizations working in Kolkata is provided at our page here: Resources for dementia care: Kolkata (West Bengal) Some of these may be able to provide more support/ information in Bengali.
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