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Dementia Care Notes

Resources, tips, caregiver stories for dementia caregivers in India

About Dementia
- - - Important aspects of dementia (for caregivers)
    - What is dementia?
    - Diseases that cause dementia
    - Diagnosis, Treatment, Prevention
    - Dementia Risk Reduction: Infographic
    - Stages of dementia
    - How dementia impacts behavior
    - Dementia in India: An overview
  - - Advanced reading topics (topics for volunteers/ concerned persons)
    - Dementia risk factors related research (advanced reading)
    - Dementia reports from India and outside (advanced reading)
    - More Advanced Topics: Special Topic Reads
Caring for dementia (has COVID tips)
- - - (This section is suitable for home caregivers in India, and may also help others understand caregiver challenges and situations. Additionally, care during COVID tips included in care pages and as separate discussion and infographics)
Voices and Interviews
- - - What families (caregivers and persons with dementia) say about their experince
    - Voices: Interviews with dementia caregivers
    - Voices: Caregiving in the news
    - Voices: Books by Indian caregivers
    - Voices: Persons with dementia share experiences
  - - Tips and Advice from Healthcare professionals and volunteers
    - The interviews include (click for list, descriptions and links).
    - Tips and advice from health care professionals and volunteers
    - The dementia diagnosis process: a four-part interview with Dr Sudhir Kumar. Include: Getting started and selecting a doctor, preparing for the consultation, Meeting the doctor, getting a diagnosis and understanding it, and what comes next.
    - Home care for late stage dementia, information and practical suggestions, a six part series with Dr. Soumya Hegde. Topics discussed: Prepare for home care, Getting medical advice and preparing for decline, Bruising, skin care, exercise, massage, bedsores, Constipation, Catheter use, Dental Care, Improving the Quality of Life, Eating/ swallowing problems, and Tube feeding and related decisions.
    - Also, interviews on active ageing, what to expect from day care services, managing care challenges and improving quality of life, etc.
Presentations
- - - Understanding dementia
    - Introduction to dementia
    - Difference between Dementia and Alzheimer's
    - Dementia Awareness (Comprehensive)
  - - Specific care topics
    - Dementia and Communication
    - Helping with Activities of Daily Living, an example
    - Dementia and Wandering
More Resources
- - - These resources have been collated for home caregivers in India, but may help others, too . Please evaluate before use.
Contact
- Site FAQ
- Contact us
Site Map

Dementia Risk Reduction: Infographic

About Dementia > Dementia Risk Reduction: Infographic

Dementia risk reduction infographic

Previous: Diagnosis, Treatment, Prevention Next: Stages of dementia

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Disclaimer: This is not a medical site. Visitors who want data on medical options should consult doctors and medical professionals.
Copyright © 2010-2021 Swapna Kishore - All Rights Reserved | DEMENTIA CARE NOTES is registered in the name of Swapna Kishore.. Some useful pages to know more: [Information on license and sharing] | [Site Privacy Policy] | [Contact Us] | [Site map]

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COVID and dementia care

A new page discussing issues, suggestions, and resources related to handling COVID-19 risk and lockdown challenges is now available at: Dementia Home Care, the COVID-19 infection risk, and Lockdown/ Unlock challenges Also see Dementia Care During COVID-19: Infographics With Tips

On this site...About dementia, its symptoms and medicines. Stages of dementia, How dementia affects behavior. Plan the caregiving. Learn how to talk to persons with dementia,how to help them, and to handle their changed behavior. Reduce caregiving stress. Get help and support for home care: facilities in India, online resources, downloads. Read interviews where caregivers describe their experiences, problems, solutions. See the menu bar above for our pages, or see our sitemap, or FAQ.

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यह साईट हिंदी में : dementiahindi.com

View our English and Hindi videos on the Dementia Care Notes Youtube channel

Dementia resources by city/ state

Collected resources for the convenience of families:
• Ahmedabad, Valsad (Gujarat)
• Bangalore, Mysore, others (Karnataka)
• Chennai, Coimbatore (Tamil Nadu)
• Delhi/ NCR
• Goa
• Guwahati, Imphal, Aizawl (N-E states)
• Hyderabad, others (AP, Telengana)
• Kochi, Trivandrum, others (Kerala)
• Kolkata (West Bengal)
• Mumbai (Maharashtra)
• Pune (Maharashtra)
• Other regions/ cities

Also: Resources across India and Informational websites. Full list with links also available at City-wise/ region-wise resources

Dementia Information in Indian Languages

Collected resources for the convenience of families:

• Assamese
• Bengali
• Gujarati
• Hindi
• Kannada
• Konkani

• Malayalam
• Marathi
• Punjabi
• Tamil
• Telugu
• Urdu

Recent Interviews

The dementia diagnosis process, Part 4: Understanding the diagnosis and what comes next
The dementia diagnosis process, Part 3: Meeting the doctor and getting a diagnosis
The dementia diagnosis process, Part 2: Preparing for the doctor consultation
The dementia diagnosis process, Part 1: Getting started and selecting a doctor
Use “Active Ageing” to age better and reduce dementia risk: part 2
Use “Active Ageing” to age better and reduce dementia risk: part 1
Home care for late stage dementia, Part 6: Tube feeding and related decisions
Home care for late stage dementia, Part 5: Eating/ swallowing problems

Selected caregiver interviews

Some interviews: (full list here)

Late-stage care, heartbreaks and tender moments, hospitals, dilemmas, decisions: a daughter narrates
When I see Ma struggle, I get very disturbed: a daughter-in-law describes care for a bedridden mother-in-law
Early warnings, diagnosis, medication, side-effects, an elderly father as caregiver: a daughter talks of her mother’s dementia
Dementia caregiving can create chaos: a solo caregiver describes challenges faced on multiple fronts
Keeping persons with dementia peaceful and improving their quality of life: practical tips from a nurse

View the full list of dementia caregivers and volunteers interviews

From the Hindi blog

कोविड के दौरान डिमेंशिया देखभाल – चित्रण और लेख
डिमेंशिया/ अल्जाइमर होने के जोखिम को कम करने के कुछ तरीके, चित्रों द्वारा
हम डिमेंशिया/ अल्ज़ाइमर से कैसे बच सकते हैं?
डिमेंशिया: एक गंभीर समस्या (सिर्फ “भूलने” की बीमारी नहीं)
पार्किंसन रोग और डिमेंशिया (Parkinson’s Disease and Dementia)
डिप्रेशन (अवसाद) और डिमेंशिया (Depression and Dementia)
डिमेंशिया के मुख्य प्रकार (भाग 4): अल्ज़ाइमर रोग
डिमेंशिया के मुख्य प्रकार (भाग 3): फ्रंटो-टेम्पोरल डिमेंशिया
डिमेंशिया के मुख्य प्रकार (भाग 2): लुई बॉडी डिमेंशिया
डिमेंशिया के मुख्य प्रकार (भाग 1): संवहनी डिमेंशिया (वैस्कुलर डिमेंशिया)

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Disclaimer: This is not a medical site. Visitors who want data on medical options should consult doctors and medical professionals.
Copyright © 2010-2021 Swapna Kishore - All Rights Reserved | DEMENTIA CARE NOTES is registered in the name of Swapna Kishore.. Some useful pages to know more: [Information on license and sharing] | [Site Privacy Policy] | [Contact Us] | [Site map]

About Dementia
- - - Important aspects of dementia (for caregivers)
    - What is dementia?
    - Diseases that cause dementia
    - Diagnosis, Treatment, Prevention
    - Dementia Risk Reduction: Infographic
    - Stages of dementia
    - How dementia impacts behavior
    - Dementia in India: An overview
  - - Advanced reading topics (topics for volunteers/ concerned persons)
    - Dementia risk factors related research (advanced reading)
    - Dementia reports from India and outside (advanced reading)
    - More Advanced Topics: Special Topic Reads
Caring for dementia (has COVID tips)
- - - (This section is suitable for home caregivers in India, and may also help others understand caregiver challenges and situations. Additionally, care during COVID tips included in care pages and as separate discussion and infographics)
Voices and Interviews
- - - What families (caregivers and persons with dementia) say about their experince
    - Voices: Interviews with dementia caregivers
    - Voices: Caregiving in the news
    - Voices: Books by Indian caregivers
    - Voices: Persons with dementia share experiences
  - - Tips and Advice from Healthcare professionals and volunteers
    - The interviews include (click for list, descriptions and links).
    - Tips and advice from health care professionals and volunteers
    - The dementia diagnosis process: a four-part interview with Dr Sudhir Kumar. Include: Getting started and selecting a doctor, preparing for the consultation, Meeting the doctor, getting a diagnosis and understanding it, and what comes next.
    - Home care for late stage dementia, information and practical suggestions, a six part series with Dr. Soumya Hegde. Topics discussed: Prepare for home care, Getting medical advice and preparing for decline, Bruising, skin care, exercise, massage, bedsores, Constipation, Catheter use, Dental Care, Improving the Quality of Life, Eating/ swallowing problems, and Tube feeding and related decisions.
    - Also, interviews on active ageing, what to expect from day care services, managing care challenges and improving quality of life, etc.
Presentations
- - - Understanding dementia
    - Introduction to dementia
    - Difference between Dementia and Alzheimer's
    - Dementia Awareness (Comprehensive)
  - - Specific care topics
    - Dementia and Communication
    - Helping with Activities of Daily Living, an example
    - Dementia and Wandering
More Resources
- - - These resources have been collated for home caregivers in India, but may help others, too . Please evaluate before use.
Contact
- Site FAQ
- Contact us
Site Map

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Home
About Dementia
▼
Caring for dementia (has COVID tips)
▼
Voices and Interviews
▼
Presentations
▼
More Resources
▼
Contact
▼
- Site FAQ
- Contact us
Site Map

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