This page attempts to provide a consolidated list of dementia caregiver resources in India. In case you know of any other resource, or of any error on this page, please let us know by contacting us, or add a comment below. [read disclaimer]
Information specific to various cities/ states is available on the city-wise/ region-wise resource page here. [View page with informational websites on dementia / caregiving]
- ARDSI (Alzheimer’s and Related Disorders Society of India).
- ARDSI Chapters in various cities of India.
- Dignity Foundation.
- Helpage India.
- Portal for old age solutions.
- Dementia Day Care and Respite care.
- Dementia Helplines.
- Elder Helplines.
- Helplines when distressed/ depressed.
- Palliative care resources.
- Other India-based resources, blogs and communities.
- Dementia Information in Bengali, Gujarati, Hindi, Malayalam, Marathi, Punjabi, Tamil, Telugu, Urdu.
- Online resources.
ARDSI (Alzheimer’s and Related Disorders Society of India) is one of the main resources for dementia caregivers in India. Their correct website is here. (The older website, http://www.alzheimer.org.in , is not kept updated. The information there is obsolete).
ARDSI’s activities are intended to help dementia patients and their families. ARDSI is involved in dementia and caregiving awareness activities, developing services, training family members and professionals, and undertaking research. ARDSI runs helplines to provide information on Alzheimer’s and caregiving. ARDSI also provides information for research studies on dementia. The Dementia India report 2010 was released in September 2010.
ARDSI also holds annual conferences on dementia. The last few conferences were in Bangalore (2008), Kolkata (2009), Delhi (2010), Pune (2011), Chennai (2012), and Guwahati (2013).
ARDSI has chapters in many cities. Information related to ARDSI chapters can be found in the respective city-wise/ region-wise dementia resources pages. The ARDSI site states that the Administrative office is at Kunnamkulam (Kerala). Their national office is at Delhi. Their chapters listed are given below. However please keep in mind that you may get more up-to-date information by calling up the ARDSI National Helpline.
- Bangalore (Bengaluru)
- Calicut (Kozhikode)
- Cochin (Kochi)
- Coimbatore (this chapter was inactive for some time, but may soon be revived)
- Greater Mumbai
- Jaipur (this chapter was discontinued some years ago, but may be revived)
- Kolkata (Calcutta)
- Lucknow (this chapter was discontinued some years ago, but may be revived)
- Pune (this chapter was inactive for some time, but may soon be revived)
- Trivandrum (Thiruvananthapuram)
Updates (August 2015): Two chapters, Pune and Coimbatore, have not been active for some time, and were not responding to queries. Current information suggests that these chapters may be revived. Another two chapters that were discontinued earlier, Lucknow and Jaipur, may also be revived. Information on existing chapters and the chapters being revived can be seen on the respective city pages as listed on city-wise/ region-wise dementia resources pages. Information on the Lucknow and Jaipur chapters is available on our Resources for dementia care: Others page. The information on these chapters will be updated when we get information that they have started providing services and support.
More ARDSI chapters are proposed in some cities. Examples are Baroda, Chandigarh, Ludhiana, Nagpur, Puducherry, Shimla, Srinagar, and Varanasi.
Most of the chapters provide a range of dementia-related services. Examples are memory clinic, caregiver support groups, home visits for assessment, caregiver training for home carers and for professional carers, day care centres, counseling, and helplines. They hold seminars and workshops. They publicize dementia through awareness programs, functions for the World Alzheimer’s Day, and other events. Patients and caregivers can contact the relevant ARDSI chapter for information and support. Some of the ARDSI chapters (such as Bangalore, Delhi, Hyderabad, Mumbai, Calcutta) maintain websites, though these may not have up-to-date information on events, activities, and services. It is best to contact the organizations to get the latest news.
Many ARDSI chapters are run in coordination with or managed by well-known hospitals of the city, or by major elder care service organizations. For example, ARDSI Bangalore is associated with Nightingales Medical Trust, Bangalore. ARDSI Greater Mumbai is associated with Silver Innings, Mumbai.
Information related to ARDSI chapters can be found in the respective page of the city-wise/ region-wise dementia resources pages.
Dignity Foundation works in the general area of senior care. It also provides dementia specific services, such as Dementia Day Care centres in Mumbai and Chennai. Dignity has a presence in Mumbai, Pune, Chennai, Kolkata, and Bangalore for senior care and community. Dignity Lifestyle at Neral, Maharashtra, is an assisted care facility for people with Dementia as well as other senior citizens with disability.
Dignity also runs helplines to help elders. It provides a number of services for elders. Contact information for Dignity (Mumbai, Pune, Kolkata, Bangalore, Chennai) can be seen on the city/ region specific pages listed on our city-wise/ region-wise dementia resource pages.
Helpage India works in the area of elders. It focuses on fighting isolation, poverty, and neglect. Helpage supports many initiatives for elders, including dementia initiatives like ARDSI. They also have projects on palliative care. The Helpage India website contains information on their projects and also useful downloads like old age home directories.
Helpage India has its head office in Delhi, national offices in Chennai and Kolkata, and over fifty branch offices all over India. The page gives contact information. A map showing various locations and the contact information of each location (on rolling the mouse over) is available Contact us: Our Network.
Helpage also runs helplines in 23 cities (information as of October 2013). According to Helpage, “These Helplines are used to address problems of elders such as isolation, neglect, facilitate emergency responses, provide information on access to various elderly schemes and provides linkages with the government, police and referral rescue & relief services along with offering counseling services to help elderly in distress” . Check their site for the helpline numbers. Please check the page for the latest and correct information.
Old Age Solutions is a portal on Technology Initiative for Disabled and Elderly, an initiative of the Ministry of Science and Technology, and created by AIIMS, Delhi. The portal provides comprehensive information related to health, nutritional requirements, entertainment, recreation, environment, networking and assistive devices for the ageing. The portal is available in English, Hindi, Tamil, Bengali, Marathi, and Telugu.
The Dementia India Report 2010 mentions that there are 10 dementia day care centres in India and 6 residential care facilities suitable for persons with dementia. (There may be other day care centres for the elderly that accept persons with dementia). Many of these day care and respite care centres are run by various ARDSI chapters or in association with them, or by organizations involved in senior care such as Dignity Foundation (Mumbai) and the Nightingales Medical Trust (Bangalore). The 6 residential care facilities mentioned in the report are in Mumbai, Bangalore, and various Kerala cities. These are tabulated below, with links to details available at the individual city resource pages. Updates/ corrections are welcome. You can also check the city-wise/ region-wise pages for information on day care centres and on rehabilitation/ respite care/ assisted living facilities as per the information available with us.
|Harmony Home, Kottapadi, Kerala||See contact and other details at: Resources for dementia care: Kerala cities (section on Harmony Home Kottapadi)|
|Malabar Harmony Home, Calicut (Kozhikode), Kerala||See contact and other details at: Resources for dementia care: Kerala cities (Section on Malabar Harmony Home)|
|Snehasadanam, Trivandrum, Kerala||See contact and other details at: Resources for dementia care: Kerala cities (section on Snehasadanam)|
|Nightingales Centre for Ageing and Alzheimer’s, Bangalore, Karnataka||Contact: Resources for dementia care: Bangalore (section on NCAA)|
|Cochin Harmony Home, Cochin, Kerala||See contact and other details at: Resources for dementia care: Kerala cities (section on Cochin Harmony Home)|
|Dignity Lifestyle Home, Neral, Maharashtra||See contact and other details at: Resources for dementia care: Mumbai (section on Dignity Neral)|
Since the publication of the Dementia India Report 2010 report, some day care centres have been added, and some announced. Some have closed down. Some more residential facilities now accept persons with dementia for stay, rehabilitation, assisted living, extended hospital care, etc., in cities such as Mumbai, Pune, and Delhi. Please check for the city you are interested in by clicking on the relevant link on the City-wise/ region-wise dementia care information page, for more information on available day care centres, respite care, and other facilities, as per the information available with us. Please send in information of changes that you know about, so that the data can be updated. Please note that facilities keep getting opened and closed. Always contact the place directly and evaluate it for suitability and reliability.
The dementia helpline numbers from various cities are listed here. They typically function on working days, working hours. Please note that data keeps changing and numbers may stop functioning/ change. Please send any updates you have on these helplines so that we can keep this data updated. Here’s the available data:
NATIONAL DEMENTIA HELPLINE: 04842808088 (Mon-Sat 10 AM-4 PM). E-mail: firstname.lastname@example.org
This helpline, inaugurated at 18th ARDSICON at Guwahati on 30th November, 2013, operates from Cochin and provides nation-wide support. It is managed by the ARDSI National Office. You can get information on dementia and care here, as well as information on dementia resources in India.
Other Kerala-based Dementia Helplines: +91 98461 98473, +91 98461 98786, +91 98461 98471 (managed by the ARDSI National Office)
Kolkata: (033-32214540)(managed by ARDSI Calcutta Chapter) (earlier number, 2405-4959, has been discontinued)
Bangalore: 9379792906 and 9379830631 (managed by ARDSI Bangalore Chapter/ Nightingales Medical Trust)
New Delhi: (011) 29994940, (011) 64533663 (managed by ARDSI Delhi Chapter)
Hyderabad: (040) 6610 3413 (managed by ARDSI Hyderabad Chapter)
Mumbai: 9029000091 (managed by Silver Innings)
Some cities also run Elders Helpline/ Senior Citizens’ Helpline, often a cooperation between some NGO working in the area of elder welfare, and the police department. These helplines can be used to report abuse of elders, or assist elders in various ways, as well as get information on legal and other issues that relate to elders. They may also provide information on day care facilities, respite care, home nursing facilities, services that provide attendants and nurses, and old age homes.
Helpage India runs helplines in several cities; check their site for the helpline numbers.
Also check the links on our city-wise/ region-wise dementia resource pages for elder helplines of the respective city pages.
Here are some resources (helplines/ email ids) of organizations that provide help to persons who may be depressed/ distressed. Of course, you should contact them when you feel overwhelmed, and not leave off the contacting till you are utterly desperate. Helplines are typically designed to ensure confidential and provide anonymity, but you can confirm this with them before talking.
iCall (TISS) is a nation-wide psychosocial helpline run by TISS (Tata Institute of Social Sciences) where trained counsellors provide information, emotional support and counseling to individuals in psychological distress. iCall functions 14 hours a day, 6 days a week, from 8 AM to 10 PM, Monday to Saturday. The phone number is (022)- 2552-1111, the email id is email@example.com. Read more their Facebook page.(Helpline mentioned in June 2013 newspaper report here). (information confirmed in September 2015)
Vandrevala Foundation Helpline is a 24 hour helpline by trained counsellors and psychiatrists helping callers with a wide range of problems, including depression, anxiety, and thoughts of suicide. These 24-hour helplines are in Mumbai, Surat, and Delhi, but the numbers can be accessed nationwide, and are 1860-266-2345 and 022-2570 6000 . The TV program, Satyamev Jayate also mentioned this foundation’s helpline in its mental health program (season 3) and included a support email id as: firstname.lastname@example.org .Some newspaper reports on their services are: Report on helplines in Economic Times, Report on Vandrevala Foundation, and Times of India article on psychiatric helplines.(Helpline mentioned in June 2013 newspaper report here).
Hitguj (BMC) is Brihanmumbai Municipal Corporation’s recently launched mental health helpline which offers telephonic counselling to people on a range of mental health issues. The helpline is Mumbai-based. Most callers call for problems like depression, anxiety, relationship problems, stress and economic uncertainty. Hitguj can be reached at 022-2413-1212 and is supposed to be available 24×7. One newspaper report is here (news from June 2013).
Samaritans Helpline (The Samaritan Facebook page) has a helplines at (022)-6464 3267 and 022-6565 3267 which work every day from 3 PM to 9 PM. (One earlier number, 32473267, may no longer be working) Their email id is email@example.com. (Update: July 2014)).
Aasra has a 24×7 helpline at (022)-27546669 /7 They suggest using their email id, firstname.lastname@example.org, if the phone line is busy, but there may be a lag in email response. (information confirmed by them in October 2013)).
Sumaitri is a Delhi-based crisis intervention center for depression and support and uses trained counselors. You may contact them on phone or you can visit them. They have a helpline at (011)-23389090 and work Monday to Friday 2pm to 10pm and on Saturday and Sundays 10am to 10pm. The email id is email@example.com, (information confirmed by them in October 2013).
Lifeline Kolkata is Kolkata based. They have a helpline at (033) 2463 7401 / 7432 and their timings are 10:00 am to 6:00 pm from Monday to Saturday. The email id is firstname.lastname@example.org. (information confirmed by them in October 2013).
When patients approach end-of-life stages, caregivers may need to evaluate options and make decisions. Dementia patients do not always benefit from aggressive medical treatment and repeated hospital visits, and the trade-offs are difficult for lay persons to evaluate. A very valuable input at this stage is an understanding of palliative care issues as applicable to dementia. For links that discuss palliative care in the context of dementia, check the palliative care resources on this page.
Palliative care is relatively new in India, and most of the focus has been in cancer/ HIV, and most practitioners may not be experienced in dementia palliation. Some organizations that work in palliative care and also maintain resources/ directories for various states of India are: Indian Institute of Palliative Care, the Thrissur based organizations, Pain & Palliative Care Society, Thrissur (or view the directory of the Pain & Palliative Care Society), and Trivandrum-based Pallium India (or view the Pallium directory). The following may also be useful: Pain and Palliative Care Society, Medical College, Calicut (a WHO-designated “demonstration project”) and the associated Institute of Palliative Medicine
Various major hospitals and hospices also have palliative care specialists to help patients suffering from a range of diseases. As mentioned above, when looking for a palliative care specialist, please look for persons with training/ experience of helping persons with dementia.
In addition to the directories available at these sites above, our city-wise/ region-wise pages may include specific links for palliative care in the city.
One important resource is hospitals that have strong Neurology departments that provide timely diagnosis if consulted. For example, Bangalore has one of the best hospitals for mental health, NIMHANS, for medical input as well as input on caregiving, including counseling.
Some caregivers and volunteers have pages on dementia/ caregiving as part of their sites, or they blog about their experiences or provide a forum for sharing experiences. These may be specific to dementia caregiving, or about caregiving in general, or about issues faced by senior citizens. There are also some caregiver communities. Some links:
http://swapnawrites.wordpress.com Swapna Kishore is a caregiver-blogger who has been blogging about her caregiving experiences since July 2008. Her blog has over 100 entries on her experience of caregiving for her mother with dementia, and well as some of her experiences with other caregivers of dementia patients.
http://alzheimerdiseaseinindia.blogspot.com Hendi Lingiah, a psychologist who has been actively supporting caregivers shares news updates on dementia and caregiving activities in India through this blog.
Vision Age India and URCLINIC: Dr. Ravi Samuel, a trained cognitive behavior therapist,provides Cognitive Rehabilitation for patients with brain damage and dementia and related disorders. Visit his sites, Vision Age India and URCLINIC; the sites contain information on dementia and tips for carers. A dementia booklet in English and in Tamil is available from Vision Age India, as is a Tamil information sheet on dementia.
http://groups.google.com/group/ardsi-hyd-public/about is a publicly visible group of ARDSI Hyderabad, where they discuss the activities of ARDSI Hyderabad as well as share information about dementia and caregiving
http://careforcarers.wordpress.com/ Set up by Ekta Hattangady, this site includes some interviews of caregivers and tips for caregivers
http://caregiverslinkonline.com This is a social venture working to support informal caregivers and families. They are not dementia-specific, and their current projects focus on mental health, but they may be useful to connect with other caregivers, concerned persons, services, and resources.
In case you are aware of any other dementia caregiving resources in India, or have updates on the above resources, please leave a comment below, or contact us with the information]
- Bengali: Booklet on dementia from Alzheimer's Society (UK). Bengali information booklet from Scotland: Dementia booklet in Bengali (PDF file). Also, call/ email ARDSI Calcutta Chapter for availability of printed booklets on dementia/ care in Bengali. A new and comprehensive resource for dementia/ care information in Bengali is the website of Alzheimer's Association of Bangladesh. This website has several pages in Bengali that explain dementia as well as related caregiving aspects. Also, Old Age Solutions, a portal with information and resources for the elderly (from the Govt. of India and AIIMS), has a Bengali version ; this includes a webpage on cognitive impairment and dementia.
- Gujarati - Booklet on dementia from Alzheimer's Society (UK).
- Hindi - A full-fledged site with dementia and caregiving information in Hindi is available at Dementia Hindi. This site has over 40 detailed pages explaining dementia and how families can handle the caregiving. The site also includes links to Hindi material available from other websites across the world and to available Hindi videos and downloads (e.g.: for our Hindi presentations, videos, and documents, for other Hindi videos, and for various other Hindi resources from across the Internet). Queries to this site can be sent in Hindi or English and will be answered in the same language. Hindi videos on dementia/ care are available at: Youtube channel of Dementia Care Notes. There is also a Hindi blog on dementia and caregiving .
- Malayalam - A dementia caregiver manual in Malayalam, first edition, is available courtesy Dr. Shaji : Download the Malayalam manual (PDF file). (caution: this is only a general guideline and does not substitute professional advice which should be obtained from the doctor who examines the patient with dementia)
- Marathi: Old Age Solutions, a portal with information and resources for the elderly (from the Govt. of India and AIIMS), has a Marathi version ; this includes a webpage on cognitive impairment and dementia.
- Punjabi - Booklet on dementia from Alzheimer's Society (UK) . Punjabi information booklet from Scotland: Dementia booklet in Punjabi (PDF file). A video explaining dementia (Atiq Hassan, UK) at: Punjabi - Introduction to dementia from Atiq Hassan, Dementia Adviser.
- Tamil - An explanation of dementia from Vision Age, Chennai. Also available in Tamil: Booklet on dementia from Alzheimer's Society (UK). Several booklets from Alzheimer's Australia in Tamil (topics include what is dementia, diagnosing, early planning, communication, taking a break, changed behaviours). Some documents on dementia and its assessment and possible activities etc. are available (may need special font installed): from Lanka Alzheimer's Foundation. You can also call/ email Vision Age for availability of printed booklets on dementia/ care in Tamil. A book written by DR.V.S.Natarajan (136 pages) is available: contact Dr.V.S.Natarajan, Adiparasakthi Clinic, A book written by DR.V.S.Natarajan (136 pages) is available: contact Dr.V.S.Natarajan, Adiparasakthi Clinic, Chennai, Ph: 044 -26412030, 044 – 26267282, email: email@example.com . For resources and information useful to the elderly, Old Age Solutions, a portal from the Govt. of India and AIIMS), has a Tamil version.
- Telugu - Documents from ARDSI Hyderabad Deccan chapter: Help for caregivers (PDF file), What is dementia (PDF file), Information on dementia and dementia events (PDF file). Also, call/ email ARDSI Hyderabad Deccan Chapter for availability of printed booklets on dementia/ care in Telugu. Another resource is Old Age Solutions, a portal with information and resources for the elderly (from the Govt. of India and AIIMS), which has a Telugu version ; this includes a webpage on cognitive impairment and dementia.
- Urdu - "What is dementia" (PDF file)(from ARDSI Hyderabad Deccan chapter), Summary page on dementia and downloadable Urdu booklets ("What is Alzheimer's" and "Booklet for caregivers") from Alzheimer's Pakistan, booklet on dementia from Alzheimer's Society (UK). Urdu information booklet from Scotland: Urdu document on Dementia from Scotland (PDF file). Also, call/ email ARDSI Hyderabad Deccan Chapter for availability of printed booklets on dementia/ care in Urdu. Also, a video explaining dementia: Urdu - Introduction to dementia from Atiq Hassan, Dementia Adviser.
Also see our video resources page for links to videos in Indian languages.
In this Internet age, international online resources and forums on dementia and related care are accessible from anywhere in the world. Family caregivers and other concerned persons in India can use these to learn more about dementia and care, and to read about and share caregiver stories. Click here to get data on International/ online resources: Informational websites on dementia / caregiving.
For city-specific resources, check this page: City-wise/ region-wise resources.
For International/ online resources, check this page: Informational websites on dementia / caregiving.
Disclaimer: The resources/ links provided here are intended for information and convenience, and are not in any way intended to be an endorsement for the resource. Also, facilities offered keep changing, so please contact the organizations to get up-to-date information.
[This page was last updated in September, 2015]