- Dementia Care Notes - https://dementiacarenotes.in -

Welcome to Dementia Care Notes!

Dementia is a group of symptoms that can occur as a result of some diseases that damage the brain (examples of such diseases: Alzheimer’s Disease, strokes, Fronto-Temporal Dementia, Lewy Body Dementia, etc). The abilities of persons with dementia decline in many ways. This affects them and everyone around them — family members, friends, colleagues, etc.

Caregiver stories, problems, suggestions, and wishlists shared through interviews [1]

Read about caregiver challenges like facing accusations of murder, social isolation, sibling conflicts, high costs, untrained attendants. Read about juggling responsibilities, handling long-distance care, adjusting homes. What caregivers want. Click here to read the interviews... [1]

As dementia progresses, persons with dementia may forget things more often. They may have problems finding the correct words. They may not be able to recognize or use objects around them. Normal activities become more difficult to do. Their personality may change. They may withdraw or become frustrated, bewildered, agitated, or even abusive. Family members do not know how to help them. They do not know about caregiving skills, available resources, or support. They think the person is having typical old age problems. They expect the person with dementia to think and behave like elders who don’t have dementia. This makes things more difficult for the person with dementia. All this makes dementia care in India very overwhelming for everyone in the family.

This DEMENTIA CARE NOTES® site offers information, resources, and caregiver stories that could help dementia caregivers. It is intended for family caregivers of persons with dementia, friends, colleagues, and anyone concerned about dementia care in India.

Dementia is a serious medical condition. Most families don’t know that dementia cannot be cured. No medicine can slow down the diseases causing a patient’s dementia. That is, no medicine can slow the rate of brain damage. Some medicines give some relief from symptoms for some forms of dementia, and can even make a significant difference for some time to their quality of life. But medicines don’t help everyone with dementia. Dementia goes on for many years and the help needed by the person increases with time. Given that medicines give only limited relief, good care is very important for the person’s well-being. If families understand dementia, they can find better ways to plan and provide care. Everyone will be less stressed.

Many caregivers are confused by conflicting explanations of dementia. One such aspect is how dementia affects persons. Some reports show persons with dementia as passive persons, unable to do anything; phrases used include “not quite there” or “absent”. This is misleading. Persons with dementia can lead active and fulfilling lives if given suitable support. Some other reports show them as unreasonable, agitated, and violent. But not all persons with dementia show agitation or other worrying behavior. Also, many factors affect behavior and worrisome behavior can be reduced by adjusting things like the environment, activities, and interactions. The Dementia Care Notes site provides information to help families understand dementia and care. We also include relevant links and resources. We hope this will make the dementia care journey smoother and more effective for everyone.

Sections on this site:

Note: Are you looking for quick solutions for your caregiving problems? Start with our quicklink menu for essential caregiving tools [2]. Read on below for the sections on the site.

Not sure whether the site can help you? Wondering how to use the material available on the site? Visit our Site FAQ page [10].

Looking for information on dementia/ caregiving in Hindi? Check out our Hindi version of this site at: Dementia Hindi Opens in new window [11] or contact us if you want to discuss your concerns with someone who can speak Hindi.

Note: This is not a medical site. Visitors who want medical advice should consult doctors and medical professionals. They can also visit authoritative medical sites.

Page/ post last updated on: August 31, 2018