- Dementia Care Notes - https://dementiacarenotes.in -

Dementia reports, studies, policy news from India and outside

Caring for dementia patients [1] menu. To know basics of dementia, start with What is Dementia [2].

Here is a selection of dementia and caregiving related reports and policy discussions, mainly from India, and also some major reports from outside India

The Dementia India Report 2010

The Dementia India Report 2010 was released on September 21, 2010, World Alzheimer’s Day. It can be downloaded from the ARDSI site Opens in new window [8]. The links for the downloads are here: Executive summary (PDF file) Opens in new window [9] and Full report (PDF file) Opens in new window [10].

Highlights of the report are discussed on this site on the page Dementia and caregiving in India [11].

[Also read our page discussing dementia and caregiving status in India [11]]

For translations of the report:

[Back to Top] [14]

Dementia India Strategy Report 2018

ARDSI published a national strategy document after a series of region-wise national consultative meetings and presented this the Union Government in September 2018 and the the Hon. Health Minister Shri J P Nadda who received it gave a public assurance that the central government would soon come out with a country plan for dementia.

The submitted document can be viewed/ downloaded at ARDSI’s site at: Dementia India Strategy Report 2018 Opens in new window [15]

[Back to Top] [14]

Dementia in India 2020

Dementia in India 2020 was published by the Alzheimer’s and Related Disorders Society of India (ARDSI) Cochin Chapter, with academic support from Kerala University of Health Sciences (KUHS) Thrissur and released at the International Conference of Alzheimer’s Disease 2019, Cochin University of Science and Technology (CUSAT). With the permission of the editors, the report is available on this site and can be viewed at Dementia in India 2020 Opens in new window [16].

The document collects 14 chapters by various authors, edited by Dr CT Sudhir Kumar et al. (suggested citation is Kumar CTS, Shaji KS, Varghese M, Nair MKC (Eds) Dementia in India 2020.) The document includes collection of caregiver quotes and chapters on dementia assessment and diagnosis,Psychological and Behavioural Interventions in Dementia, Medical Management of Dementia, Dementia Prevalence in India, Dementia Care Costs in India, Legal and Ethical Issues in Dementia: Indian Scenario, Development of Community Resources for Dementia Care, Community Based Rehabilitation of People with Dementia: An Indian Experience, Caregiver Stress and interventions, Digital Interventions to Support Families, Dementia: Risk and Protective Factors, Experts’ and Stakeholders’ Consensus on Challenges and Priorities in Dementia, and National Dementia Strategy and Plan for India- the Roadmap.

[Back to Top] [14]

Studies related to dementia prevalence, risk factors, and care interventions in India

[Back to Top] [14]

Important, recent reports from other countries/ world-wide

Risk Reduction related major publications

Risk reduction of cognitive decline and dementia: WHO Guidelines: In May 2019, World Health Organization (WHO) published a 96 page report with evidence-based recommendations on lifestyle behaviours and interventions to delay or prevent cognitive decline and dementia.This is intended as a tool for health care providers, governments, policy-makers and other stakeholders to strengthen their response to the dementia challenge. The report can be viewed/ downloaded from this page: Risk reduction of cognitive decline and dementia: WHO Guidelines Opens in new window [40] .

Lancet Commissions: Dementia prevention, intervention, and care: The Lancet Commission on Dementia Prevention, Intervention, and Care has published a 62 page detailed report in July 2017, consolidating expert opinion on the emerging knowledge of how to prevent and manage dementia. This report includes the key messages of the commission as well as supporting discussions, data, and references. For this the Commission has looked at their understanding of the best evidence of how to prevent the preventable, treat the treatable, and care for both the person living with dementia and the carer. Their conclusions and process are documented in the report. The report can be viewed/ downloaded free by using a (free) subscriber account on the Lancet site, at Dementia prevention, intervention, and care Opens in new window (PDF file) [41] .

Nutrition and dementia: A review of available research (ADI): In February 2014, Alzheimer’s Disease International (ADI) published a report that investigates the role of right nutrition in the life of persons with dementia. The report reviews dietary factors across the life course in terms of the risk of late onset dementia. It includes suggestions on nutrition-related actions. Read about it/ download it: Nutrition and dementia: A review of available research Opens in new window [42].

Also see World Alzheimer Report 2014, detailed in next section.

World Alzheimer Report, published yearly by Alzheimer’s Disease International

For the past few years, the Alzheimer’s Disease International has been publishing an annual World Alzheimer Report, each report focused on one important aspect and dealing with it in detail, combining research data, observations from across the world, and suggestions/ conclusions. Here are the reports published so far.

Various issues of Alzheimer’s Disease International’s Global Perspective

Every quarter or so, Alzheimer’s Disease International (ADI) publishes a newsletter, Global Perspective. This includes recognition for people with dementia and updates on work being done for dementia from many countries. See the full list or subscribe to the newsletter Opens in new window [55].

Alzheimer’s Disease Facts and Figures (USA), annual reports from Alzheimer’s Association, USA

Every year, Alzheimer’s Association, USA, publishes a report on Alzheimer’s Disease Facts and Figures, where it covers topics like definitions, symptoms, types of dementia, diagnostic criteria, prevalence, mortality, impact on caregivers and cost to nation (USA), etc., and also includes some special focus topics (focus for that year).

Information from, and download links for the latest report (2019) can be seen at this link Opens in new window [56]. Older reports were earlier available at the site, but have not been available after site reorganization (which began in June 2018 ) and it is not yet clear when and where the older reports will be made available. Please contact them if you want the older reports.

Women and Dementia: Some published reports

Some international reports have examined how dementia affects women and the various factors that are involved.

The Women & Dementia – A Global Challenge Opens in new window [57] report was published in March 2017 by the Global Alzheimer’s & Dementia Action Alliance/ Alzheimer’s Society. It collates published research on the issue and highlights that the prevalence, care burden and stigma of dementia disproportionately affects women, making it a global women’s health, social care and rights challenge that can no longer be ignored. The report analyses existing national policy responses to the gendered challenges of dementia and outlines the international frameworks that can guide national dementia plans and initiatives to providing gender-appropriate responses.

The Women and Dementia: A global research review Opens in new window [58] report was published in June 2015 by Alzheimer’s Disease International, and discusses the main issues affecting women in relation to dementia from an international perspective. It examines the effect of gender on three specific groups: women living with dementia; women caring for people with dementia in a professional caring role; women undertaking an informal caregiving role for someone with dementia.It focuses on cross-cutting issues, including factors affecting women in low and middle income countries (LMICs); family structures and kinship; and the effects of migration.

Important releases from WHO

Dementia: a public health priority (2012) by World Health Organization (WHO): The World Health Organization and Alzheimer’s Disease International published a report on dementia in 2012. Read about it and download it here: Dementia: a public health priority (PDF file) Opens in new window [59]. This is a standard, much-quoted landmark report.

Thematic briefs for the First WHO Ministerial Conference on Global Action Against Dementia, March 2015: The World Health Organization (WHO) released four short, thematic briefs for the First WHO Ministerial Conference on Global Action Against Dementia, 16-17 March 2015. These thematic briefs are listed on the WHO page Opens in new window [60]/ They can be downloaded: The epidemiology and impact of dementia: current state and future trends Opens in new window [61], Supporting informal caregivers of people living with dementia Opens in new window [62], Ensuring a human rights-based approach for people living with dementia Opens in new window [63], and Dementia: a public health priority Opens in new window [64].

Global burden of dementia and Various National Dementia Strategies/ Policies/ Plans: status, discussions, examples.

From Plan to Impact II (ADI): Alzheimer’s Disease International released a 62-page report, From Plan to Impact II: The urgent need for action (PDF file) Opens in new window [65] in May 2019. This provides a status update on related to the the national dementia/ Alzheimer’s plans and policies of various nations.

Lancet: Global, regional, and national burden of Alzheimer’s disease and other dementias: In November, 2018, Lancet published the Global, regional, and national burden report for 1990–2016. This 19-page report aims to present the first detailed analysis of the global prevalence, mortality, and overall burden of dementia as captured by the Global Burden of Diseases, Injuries, and Risk Factors (GBD) Study 2016, and to highlight the most important messages for clinicians and neurologists.The report can be viewed/ downloaded from the Lancet site, at Global, regional, and national burden of Alzheimer’s disease and other dementias, 1990–2016: a systematic analysis for the Global Burden of Disease Study 2016 Opens in new window (PDF file) [66] .

Alzheimer’s Disease International page for plans: ADI maintains a page at Government Alzheimer plans Opens in new window. Here it discusses the broad areas that national plans must address. It provides reports, reviews, and status updates related to the the national dementia/ Alzheimer’s plans and policies of various nations.

World Dementia Council: Statement of Purpose: The World Dementia Council has published a “Statement of Purpose” in May, 2014. View an archived version: Dementia Council publishes statement of purpose Opens in new window [67].

The Global Impact of Dementia 2013-2050 (ADI): Alzheimer’s Disease International (ADI) has published a policy brief for heads of government. This brief updates the earlier published ADI’s prevalence figures. This brief was released ahead of the first G8 Dementia Summit held in December 2013. It includes data on the current and future impact of dementia world-wide. It also provides recommendations. Read about it/ download it Policy Brief: The Global Impact of Dementia 2013-2050 Opens in new window [68].

Some examples: National Dementia Strategy (England, Wales, Northern Ireland), National Plan to Address Alzheimer’s Disease(USA): Information about these national dementia strategies and related download links are available here: Information on National Dementia Strategies in England, Wales and Northern Ireland Opens in new window [69]. USA has released a national plan for Alzheimer’s Disease and related disorders. Information on this plan and its various versions are this link (PDF download links also available): National Plans to Address Alzheimer’s Disease (USA) Opens in new window [70].

Dementia in the Asia Pacific Region (2014 report): Alzheimer’s Disease International published Dementia in the Asia Pacific Region in November 2014, the month when the Asia Pacific Regional Conference 2014 was held in New Delhi, India. This report gives some insight on of the social and economic impact of dementia across the countries of the Asia Pacific region. It includes updated estimates of dementia prevalence data for the region. For example, it tells us that the number of people with dementia in the region will increase from 23 million in 2015 to almost 71 million by 2050. Profiles of ADI member associations in this region are also included. Read the report: “Dementia in the Asia Pacific” Opens in new window [71] or download it: Dementia in the Asia Pacific (PDF file) Opens in new window [72].

Dementia Friendly Communities (DFCs)

Alzheimer’s Disease International maintains resources on DFcs at Dementia Friendly Communities (DFCs) Opens in new window [73]. The principles and a collection of initiatives are also available as reports in PDF format fromthis page.


28th International Conference of ADI, April 2013, Taipei (Dementia: Action for Global Change): ADI partnered with TADA Chinese Taipei to host the 28th International Conference of Alzheimer’s Disease International in Taipei from 18 to 20 April 2013. The conference heading was Dementia: Action for Global Change. Read about the ADI 2013 conference here Opens in new window [74]. The presentations are available here: 28th International Conference of ADI Presentations Opens in new window [75].

New Diagnostic Criteria and Guidelines for Alzheimer’s Disease: In April 2011, new diagnostic criteria and guidelines for AD were released (27 years after the last release of such guidelines). Read this report on the release Opens in new window [76] (the page includes an FAQ on the new guidelines, and has download links for the guidelines). These revised guidelines recognize three stages of AD. They propose biomarkers for preclinical Alzheimer’s Disease, Mild Cognitive Impairement (MCI), and Alzheimer’s Disease. Diagnostic criteria are provided for AD. All-cause dementia is also defined (not just AD).

Nun’s Study

The Nun Study is a longitudinal study of aging and Alzheimer’s disease. It is funded by the National Institute on Aging. Results from this study are considered very important in understanding how Alzheimer’s develops and grows, and how various persons show the symptoms. Read about the study here: The Nun Study Opens in new window [77]

[Back to Top] [14]

Page/ post last updated on: January 18, 2020

Previous: Dementia risk factors related research [78] Next: More Advanced Topics: Special Topic Reads [79]